Stanford University 2nd Annual Spinal Muscular Atrophy Continuing Medical Education Conference: Best Practices for SMA in an Evolving Treatment Era: Advantages & Challenges of Multidisciplinary Care

Virtual 3-Day Brunch Seminar Series

Thursday, December 3, 2020: 8:30 AM to 11:30AM Pacific (11:30AM-2:30PM Eastern; 5:30PM- 8:30PM Central European)
Friday, December 4, 2020: 8:30 AM to 11:05 AM Pacific (11:30AM-2:05PM Eastern; 5:30PM- 8:05PM Central European)
Saturday, December 5, 2020:  8:30 AM to 11:30AM Pacific (11:30AM-2:30PM Eastern; 5:30PM- 8:30PM Central European)

Building on the success of our first spinal muscular atrophy (SMA) continuing medical education conference in 2019, the education and training of the healthcare community continues.  In this era of disease-specific treatments for individuals with SMA, the options for multidisciplinary medical and rehabilitative management are continuing to expand.  Optimal management and treatment recommendations are evolving while ethical considerations are weighed to treat and manage patients with SMA effectively.  The goal of the course is to enhance the understanding of medical and rehabilitative management of SMA for healthcare providers who practice within or outside specialized centers, including: physicians; advanced care providers; physical, occupational, and speech therapists; nurses; social workers or other complex care team members.  As more individuals with SMA are being diagnosed earlier, treated more effectively, and living longer lives, community providers are increasingly engaged with this population and the groundbreaking therapeutics that are revolutionizing their care. Furthermore, novel treatments will soon require similar care consideration for many other neuromuscular disorders.

This virtual 3-day brunch seminar series is provided to (1) integrate new 2020 advances into comprehensive care; and (2) use new SMA standards as a model for multi-disciplinary care of all neuromuscular disease.

For each day, the 3-hour seminar will involve lectures that overview SMA multidisciplinary medical management across all ages and clinical presentations, including updates on available therapeutic treatments, issues related to newborn screening, and ethical considerations in the treatment and management of SMA.  Each day the didactics will be followed by in-depth discussions of the evolving SMA phenotypes across the lifespan, with case-based review of best practices for multidisciplinary care by physical, occupational, and speech therapists as well as by medical providers. The sessions will review SMA phenotypes by functional status and include interactive break-out sessions to develop rehabilitation programs that identify appropriate evaluations, goals, interventions and exercise strategies.

At the end of this conference, participants will have an understanding of the current advances in multidisciplinary medical and rehabilitative management of SMA. Attendees will comprehend how to relate the standards of care to clinical practice, determine the most appropriate medical and rehabilitative interventions, and consider the ethical deliberations that accompany ethical treatment and management.

Registration fee includes course materials and certificate of participation..

Early Bird Rate: 

Trainees/Residents - $75
Nurses/AHP - $125 
Physicians - $175
Industry- $300

After 11/04/20 Rate: 

Trainees/Residents - $75
Nurses/AHP - $175 
Physicians - $225
Industry- $350

Tuition may be paid by Visa, MasterCard or check. Your email address is used for critical information, including registration confirmation, evaluation, and certificate. Be sure to include an email address that you check frequently. If you prefer to pay by phone or check, please contact the Stanford Center for CME at (650) 497-8554 for assistance.

STAP-eligible employees can use STAP funds towards the registration fees for this activity.  Complete the STAP Reimbursement Request Form and submit to your department administrator. 

Scholarships to support participation in this CME are available through Cure SMA as part of a program that supports the professional development of PIs, PT/CEs, and CRCs. PT/CEs wishing to learn more and apply can find more information under the “Scholarship Program” section of www.curesma.org/clinical-trial-readiness. Please note that although preference will be given to PTs/CEs involved in SMA clinical research, all are welcome to apply. If you would like to inquire as to the availability of scholarship funds prior to applying, please contact [email protected]. 

1. Summarize the advantages and challenges of multidisciplinary care required for patients with SMA.
2. Choose and organize suitable rehabilitation programs based on best practices for functional status with available standards of care recommendations.
3. Recognize the ethical considerations for SMA treatment and management in this era of evolving disease-specific therapeutics and newborn screening.

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

<<if Joint Providership>> In support of improving patient care, this activity has been planned and implemented by Stanford Medicine and . Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 
 
Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this Live Activity for a maximum of 9.50 AMA PRA Category 1 Credits^TM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

Accreditation Council of Pharmacy Education (ACPE) 
Stanford Medicine designates this knowledge-based activity for a maximum of [insert number] hours. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion.

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this [insert learning format] activity for a maximum of [insert number] ANCC contact hours.  

California Board of Registered Nursing (CA BRN)
Stanford Medicine Provider approved by the California Board of Registered Nursing, Provider Number 17874, for [insert number] contact hours.

ASWB Approved Continuing Education Credit (ACE) – Social Work Credit 
As a Jointly Accredited Organization, Stanford Medicine is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this activity receive [insert number] [insert type*] continuing education credits. 
*Types of credit include: ethics, clinical, cultural competence, or general

American Academy of Physician Associates (AAPA) - Live 
Stanford Medicine has been authorized by the American Academy of PAs (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This live activity is designated for [insert number] AAPA Category 1 CME credits. PAs should only claim credit commensurate with the extent of their participation.  

American Academy of Physician Associates (AAPA) - Enduring Materials 
Stanford Medicine has been authorized by the American Academy of PAs (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This enduring activity is designated for [insert number] AAPA Category 1 CME credits. Approval is valid until {Expiration Date}. PAs should only claim credit commensurate with the extent of their participation. 

American Psychological Association (APA) 
Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. 

Commission on Dietetic Registration (CDR)
Completion of this RD/DTR profession-specific or IPCE activity awards CPEUs (One IPCE credit = One CPEU).
If the activity is dietetics-related but not targeted to RDs or DTRs, CPEUs may be claimed which are commensurate with participation in contact hours (One 60 minute hour = 1CPEU)
RD’s and DTRs are to select activity type 102 in their Activity Log. Sphere and Competency selection is at the learner’s discretion.

American Dental Association’s Continuing Education Recognition Program (ADA CERP)
Stanford Medicine is an ADA CERP Recognized Provider. ADA CERP is a service of the American Dental Association to assist dental professionals in identifying quality providers of continuing dental education. ADA CERP does not approve or endorse individual courses or instructors, nor does it imply acceptance of credit hours by boards of dentistry. Concerns or complaints about a CE provider may be directed to the provider or to the Commission for Continuing Education Provider Recognition at ADA.org/CERP.

Stanford Medicine designates this activity for <<number of credit hours>> continuing education credits.

Board of Certification, Inc (BOC)
Stanford Medicine (BOC AP#: 0000751) is approved by the Board of Certification, Inc. to provide continuing education to Athletic Trainers (ATs). This program is eligible for a maximum of [insert number] Category A hours/CEUs. ATs should claim only those hours actually spent in the educational program. 

Association of Regulatory Boards of Optometry's Council on Optometric Practitioner Education (COPE)
This course has been accredited for [insert number] hours of continuing education credit.
COPE Course ID #:
COPE Activity/Event #:

<<For activities with AMA PRA Category 1 Credit and approved for MOC only>>

American Board of Anesthesia MOC Credit 
This activity contributes to the CME component of the American Board of Anesthesiology’s redesigned Maintenance of Certification in Anesthesiology^TM (MOCA®) program, known as MOCA 2.0®. Please consult the ABA website, www.theABA.org, for a list of all MOCA 2.0 requirements. 

American Board of Internal Medicine MOC Credit 
Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 9.50 MOC points in the American Board of Internal Medicine’s (ABIM) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit.

American Board of Otolaryngology – Head and Neck Surgery MOC Credit
Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn their required annual part II self-assessment credit in the American Board of Otolaryngology – Head and Neck Surgery’s Continuing Certification program (formerly known as MOC). It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of recognizing participation. 

American Board of Pathology MOC Credit
Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 9.50 Lifelong Learning MOC points in the American Board of Pathology’s (ABPath) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit participant completion information to ACCME for the purpose of granting ABPath MOC credit.

American Board of Pediatrics MOC Credit 
Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 9.50 MOC points in the American Board of Pediatrics’ (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.

American Board of Surgery MOC/CC Credit 
Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn credit toward the CME [and Self-Assessment requirements] of the American Board of Surgery’s Continuous Certification program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABS credit. 

MOC Participation Threshold

Learner participates in verbal or chat-based case discussion/conversation as judged by a group leader or observer.

Learner completes answers to a quiz, percent of correct answers required will be set by provider.

Learner writes a reflective statement on making a commitment to change or maintaining an element of practice. Validity of all written statements will be assessed prior to awarding credit.

Learners engage adequately to select answers to questions using the ARS. Threshold set by provider.

Learner participates in the table-top discussion and writes a possible next step to each question/set point in discussion. Judged by a group leader or observer.

Learner participates in simulation as judged by a facilitator or observer.

Cancellation Policy
Cancellations received in writing no less than 20 days before the course will be refunded, less a 20% administrative fee. No refunds will be made on cancellations received after that date. Please send cancellation requests to [email protected].

Stanford University School of Medicine reserves the right to cancel or postpone this program if necessary; in the event of cancellation, course fees will be fully refunded. We are not responsible for other costs incurred such as non-refundable airline tickets or hotel penalties.

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME Conference Coordinator.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: http://lane.stanford.edu/portals/cultural.html

For activity related questions, please contact
     Name: Mary Sisney
     Title: Marketing and Meeting Planning Specialist
     Ph: (650) 724-7166 
     Email: [email protected]

For CME general questions, please contact 
     Ph: (650)-497-8554
     Email: [email protected]

The Stanford University School of Medicine adheres to ACCME Criteria, Standards and Policies regarding industry support of continuing medical education. Disclosure of faculty and their commercial relationships will be made prior to the activity.

Member Information

Role in activity

Nature of Relationship(s) / Name of Ineligible Company(s)

Ana Tesi Tesi Rocha, MD
Clinical Associate Professor, Pediatric Neurology & Neurological Science
Stanford University Medical Center

Co-Course Director, Faculty

Advisory Board-Sarepta, Biogen

John W Day, MD, PhD
Professor of Neurology and Pediatrics (Genetics) and by courtesy, Pathology
Stanford University Medical Center

Course Director, Faculty

Advisory Board-Biogen Idec|Contracted Research-Biogen Idec|Contracted Research-AveXis Therapeutics|Advisory Board-AveXis Therapeutics|Speakers Bureau-Genentech, Inc.|Contracted Research-Genentech, Inc.|Advisory Board-Genentech, Inc.|Contracted Research-Sarepta Therapeutics|Advisory Board-Sarepta Therapeutics|Contracted Research-Audentes|Contracted Research-Pfizer, Inc.|Contracted Research-Ionis Pharmaceuticals|Contracted Research-Scholar Rock|Contracted Research-Cytokinetics|Advisory Board-Cytokinetics|Royalty-Athena Diagnostics

Jill Abramson, MD
Associate Medical Director, Medical Operations and Policy Branch
Director, CCS Specialty Programs

Faculty

Nothing to disclose

Kim Anderson, PA

Faculty

Nothing to disclose

Alison Ballard, MSN, RN, CPNP-PC
Certified Pediatric Nurse Practitioner
Children’s Hospital of Colorado

Faculty

Nothing to disclose

Alyssa Burgart, MD
Clinical Associate Professor, Anesthesiology, Perioperative and Pain Medicine, Clinical Associate Professor, Pediatrics
Stanford Health Care

Faculty

Nothing to disclose

MyMy Buu, MD
Clinical Associate Professor, Pediatrics - Pulmonary Medicine
Stanford University School of Medicine

Faculty

Nothing to disclose

Michelle Cao, DO
Clinical Associate Professor, Neurology & Neurological Sciences & Clinical Associate Professor, Psychiatry and Behavioral Sciences - Stanford Center for Sleep Sciences and Medicine
Stanford University School of Medicine

Faculty

Speakers Bureau-Genzyme Corporation

Harvey J Cohen, MD
Pediatric Hematology and Oncology

Faculty

Nothing to disclose

Becky Hurst Davis, MS, RD, CSP, CD, CNSC
Pediatric Nutritionist
Intermountain Healthcare

Faculty

Nothing to disclose

Morgan J Duffy, MSc
Head of Strategy and Operations
OneFifteen

Faculty

Bakri Elsheikh, MD
Professor Department of Neurology
The Ohio State University

Faculty

Advisory Board-Biogen Idec|Advisory Board-Argenx

Timothy Estilow, OTR/L
Occupational Therapist, Occupational Therapy Department
The Children's Hospital of Philadelphia

Faculty

Nothing to disclose

Richard Finkel, MD
Director of Translational Neuroscience Research
St. Jude Children's Research Hospital

Faculty

Advisory Board-AveXis|Advisory Board-Biogen Idec|Advisory Board-Capricor|Advisory Board-Catabasis|Advisory Board-ReveraGen|Advisory Board-Roche|Advisory Board-Scholar Rock|Consulting fees-Neurogene|Contracted Research-AveXis|Contracted Research-Biogen Idec|Contracted Research-Capricor|Contracted Research-Catabasis|Contracted Research-ReveraGen|Contracted Research-Roche|Intellectual Property Rights/Patent Holder-Children's Hospital of Philadelphia|Royalty-Elsevier|Royalty-National Jewish Center for Immunology|Advisory Board-n-Lorem Foundation|Advisory Board-Every Life Foundation

Marie Hamilton, MSN, RN, CNS, CWOCN
Wound and Ostomy Team Member
Lucile Salter Packard Children’s Hospital

Faculty

Nothing to disclose

Kayla Hernandez, SLP
Speech-Language Pathologist, Feeding and Swallowing Program
Boston Children's Hospital

Faculty

Nothing to disclose

Christy Holman, BS

Faculty

Andrea Johnson, MSN
Manager Wound & Ostomy Team
Stanford Children's Health

Faculty

Nothing to disclose

Sara Kevern, RD, CNSC
Clinical Dietitian III
Stanford Health Care and Stanford Children’s Health

Faculty

Consulting fees-Genentech, Inc.

Kristin Krosschell, DPT
Professor of Physical Therapy and Human Movement Sciences and Pediatrics
Northwestern University Feinberg School of Medicine

Faculty

Consulting fees-Cure SMA|Consulting fees-Biogen|Advisory Board-Roche|Consulting fees-Aspa Therapeutics|Grant support-American Physical Therapy Association|Contracted Research-Lurie Children's Hospital subcontracts for Biogen, Scholar Rock, Avexis and NIH/NINDS supported studies

Kathie S Lin, MD
Clinical Assistant Professor, Neurology & Neurological Sciences
Stanford University

Faculty

Nothing to disclose

Eugenio Mercuri, MD, PhD
Professor of Pediatric Neurology
Catholic University
Italy

Faculty

Advisory Board-Novartis AG|Advisory Board-Roche|Advisory Board-Biogen Idec|Advisory Board-scholar Rok

Jacqueline Montes, PT, EdD, NCS
Assistant Professor of Rehabilitation and Regenerative Medicine in the Program for Physical Therapy
Columbia University Irving Medical Center

Faculty

Advisory Board-Biogen Idec|Advisory Board-Roche|Consulting fees-Scholar Rock|Advisory Board-Sarepta

Julie Muccini, Other
Occupational Therapist, Clinical Research Manager, Human Performance Lab
Stanford University

Faculty

Consulting fees-Genentech, Inc.

Leslie Nelson, PT, PhD
Assistant Professor, Southwestern School of Health Professions, Department of Physical Therapy
University of Texas Southwestern

Faculty

Consulting fees-Roche|Advisory Board-Biogen|Advisory Board-Scholar Rock

Melissa Ou, ACSW, MSG, CCM
Director of Clinical Engagement and Support
Muscular Dystrophy Association

Faculty

Nothing to disclose

Mary Schroth, MD
University of WI School of Medicine and Public Health

Faculty

Nothing to disclose

Danielle Sheypuk, PhD
Licensed Psychologist
Private Practice- Self-Employed

Faculty

Nothing to disclose

Carly Siskind, MS
Senior Genetic Counselor
Stanford Health Care

Faculty

Consulting fees-Genentech, Inc.

Sarah Stranberg, MA
Senior Speech-Language Pathologist
Stanford Neuroscience Health Center

Faculty

Consulting fees-Genentech, Inc.|Consulting fees-Roche|Consulting fees-doc.ai

Holly K. Tabor, PhD
Associate Professor
Stanford University

Faculty

Nothing to disclose

John S Vorhies, MD
Assistant Professor of Orthopaedic Surgery
Lucile Salter Packard Children’s Hospital

Faculty

Nothing to disclose

Connie Wolford, MSN, FNP-BC
Nurse Practitioner
Stanford University School of Medicine

Faculty

Speakers Bureau-Biogen Idec

Angela Wrigglesworth, M. Ed.
Abilities Advisor
Cobble + Stone Consulting

Faculty

Nothing to disclose

Tian Zhang, MD
Assistant Professor of Medicine, Hematology
Stanford University

Faculty

Sally Dunaway Young, PT, DPT
Physical Therapist, Clinical Research Manager, Division of Neuromuscular Medicine
Stanford University Medical Center

Faculty, Planner

Advisory Board-Biogen Idec|Advisory Board-Roche|Advisory Board-Scholar Rock|Advisory Board-Genentech, Inc.|Consulting fees-CureSMA

Tina Duong, PT, PhD
Physical Therapist, Sr. Research Scientist, Division of Neuromuscular Medicine
Stanford University Medical Center

Faculty, Planner

Advisory Board-Roche|Advisory Board-Biogen Idec|Advisory Board-Novartis AG

Richard S Gee, PT
Physical Therapist
Lucile Packard Children’s Hospital at Stanford

Faculty, Planner

Advisory Board-Biogen Idec|Consulting fees-Biogen Idec|Advisory Board-Roche

Dong Nguyen, MA
Administrative Associate
Stanford University

Faculty, Planner

Nothing to disclose

Dana McDonnell, MS
Clinical Research Coordinator
Stanford University

Planner

Nothing to disclose

Whitney Tang
Clinical Research Coordinator
Stanford University

Planner

Nothing to disclose

Gayla Weng, MA
Neuromuscular Program Coordinator
Stanford University

Planner

Nothing to disclose