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Advancing Care for Adults & Children with Down Syndrome OnDemand


Advancing Care for Adults & Children with Down Syndrome OnDemand Banner

  • Overview
  • Faculty
  • Begin


Date & Location
Tuesday, May 13, 2025, 12:00 AM - Friday, May 12, 2028, 11:59 PM, On Demand

Overview

A Continuing Medical Education activity presented by the Stanford Down Syndrome Research Center. The care landscape for individuals with Down Syndrome (DS) has evolved significantly, shifting from a pediatric focus to a lifelong medical concern. With life expectancy now extending into the early 60s, healthcare providers must be equipped to address the complex needs of aging adults with DS. However, current medical capacity meets only 4% of the demand, leaving critical gaps in care.

This expert-led CME series provides essential training for physicians, nurses, and allied health professionals to enhance evidence-based care for adults with DS. Gain valuable insights into neurological, medical, behavioral, and social considerations, including:

  • Down syndrome & Alzheimer’s disease

  • Recognizing early signs and coordinating specialized care

  • Medical concerns & aging

  • Avoiding diagnostic overshadowing and applying up-to-date screening and treatment protocols

  • Mental wellness & behavioral health

  • Managing psychiatric concerns with strengths-based approaches

  • Sleep apnea & health impacts

  • Exploring new treatments like Inspire therapy beyond CPAP

  • Oral & dental health

  • Addressing common conditions and improving preventive care

  • Community & social resources

  • Navigating regional centers, support services, education, and employment opportunities


Registration

Release Date: May 13, 2025

Expiration Date: May 12, 2028

Estimated Time to Complete: 6 hours 42 minutes

Registration Fee: Free

Continuing Education Certificate Fee: $25*

Click Begin (at the top) to launch the activity. Once you submit the Evaluation, the option to purchase a Continuing Education (CE) Certificate will become available.

*To purchase a CE certificate:    

1. Click on the Evaluations & Certificates tile in MY CE portal.    

2. Select Download Certificate button.    

3. Select Pay CE Certificate Fee button and follow the prompts to pay.


Credits
AMA PRA Category 1 Credits™ (6.75 hours), AAPA Category 1 CME credits (6.75 hours), ADA CERP Continuing Education Credits (6.75 hours), ANCC Contact Hours (6.75 hours), APA Continuing Education credits (6.75 hours), ASWB Continuing Education (ACE) credits (6.75 hours), Non-Physician Participation Credit (6.75 hours)

Target Audience
Specialties - Medicine
Professions - Dentist, Fellow/Resident, Non-Physician, Nurse, Physician, Physician Associate, Psychologist, Registered Nurse (RN), Social Worker, Student

Objectives
At the conclusion of this activity, learners should be able to:

  1. Recognize the evolving healthcare needs of adults with Down Syndrome (DS) and identify common medical, neurological, and mental health conditions that differ from the general population.
  2. Differentiate between DS-related symptoms and coexisting medical conditions to reduce diagnostic overshadowing and improve accurate diagnosis and treatment.
  3. Implement evidence-based screening and management strategies for Alzheimer’s disease, sleep apnea, and other prevalent conditions in adults with DS.
  4. Enhance interdisciplinary care coordination by understanding the role of specialists, community resources, and regional centers in supporting adults with DS.
  5. Apply effective communication and behavioral management techniques to improve patient-provider interactions and address mental health concerns in adults with DS.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.  

Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this Enduring Material for a maximum of 6.75 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this Enduring Material activity for a maximum of  6.75 ANCC contact hours.  

ASWB Approved Continuing Education Credit (ACE) – Social Work Credit 
As a Jointly Accredited Organization, Stanford Medicine is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this activity receive 6.75 clinical continuing education credits. 

American Academy of Physician Associates (AAPA) - Enduring Materials 
Stanford Medicine has been authorized by the American Academy of PAs (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This enduring activity is designated for 6.75 AAPA Category 1 CME credits. Approval is valid until May 12, 2028. PAs should only claim credit commensurate with the extent of their participation. 

American Psychological Association (APA) 
Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. 

American Dental Association’s Continuing Education Recognition Program (ADA CERP)
Stanford Medicine is an ADA CERP Recognized Provider. ADA CERP is a service of the American Dental Association to assist dental professionals in identifying quality providers of continuing dental education. ADA CERP does not approve or endorse individual courses or instructors, nor does it imply acceptance of credit hours by boards of dentistry. Concerns or complaints about a CE provider may be directed to the provider or to the Commission for Continuing Education Provider Recognition at ADA.org/CERP. Stanford Medicine designates this activity for 6.75 continuing education credits.


Additional Information

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require visual, auditory, cognitive, or mobility accommodations, please contact the CME office.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

References/Bibliography
For additional resources please click here or visit the Stanford Down Syndrome Research Center and The Matthew Foundation.

For activity related questions, please contact
     Name: Jessamy Tang
     Title: Managing Director, Stanford Down Syndrome Research Center
     Email: [email protected] 

For CME general questions, please contact 
 
   Email: [email protected]



Mitigation of Relevant Financial Relationships


Stanford Medicine adheres to the Standards for Integrity and Independence in Accredited Continuing Education.

There are no relevant financial relationships with ACCME-defined ineligible companies for anyone who was in control of the content of this activity, 
except those listed in the table below. All of the relevant financial relationships listed for these individuals have been mitigated.



Member Information
Role in activity
Nature of Relationship(s) / Name of Ineligible Company(s)
Faculty Photos
Craig Heller, PhD
Director, Down Syndrome Research Center Research Center
Stanford University
Co-Course Director
Nothing to disclose
Faculty Photos
Jessamy Tang
Managing Director, Down Syndrome Research Center.
Stanford University
Co-Course Director
Nothing to disclose
Faculty Photos
Joseph Richard Hopkins, MD
Clinical Professor Emeritus
Stanford University
Co-Course Director and Reviewer
Nothing to disclose
Faculty Photos
Peter Bulova, MD
Professor of Medicine
UPMC
Planner
Nothing to disclose
Faculty Photos
Ingrid Lin
Fellow
Stanford University
Planner
Nothing to disclose
Faculty Photos
Mark Mapstone, PhD
Professor and Vice Chair for Research
University of California, Irvine
Planner
Advisor-Brain Neurotherapy Bio, Inc |Advisor-Alzheon, Inc.
Faculty Photos
Sheraden J Nicholau, MA
Regional Manager
SCDD
Planner
Nothing to disclose
Faculty Photos
Rafael Pelayo, MD
Clinical Professor of Psychiatry and Behavioral Sciences
Stanford Hospital & Clinics
Planner
Nothing to disclose
Faculty Photos
Allen Wong, DDS
Kramer Davis Health
Planner
Nothing to disclose
Faculty Photos
Kristin Wright, MA
Executive Director
Sacramento County Office of Education
Planner
Nothing to disclose
Faculty Photos
Kelly Bugos, NP
Manager for the Center for Advanced Practice
Stanford Health Care (SHC)
Reviewer
Nothing to disclose
Faculty Photos
Lorena Ferdows, LCSW
Inpatient Social Work Clinician
Standford Health Care
Reviewer
Nothing to disclose
Faculty Photos
Tracy l Jordan, PhD
Stanford
Reviewer
Nothing to disclose
Faculty Photos
Yuriko Matsuo, MSN
Psychiatric Nurse Practitioner
Reservoir Health
Reviewer
Nothing to disclose
Faculty Photos
Jayna Patel, PA-C
Stanford Health Care
Reviewer
Nothing to disclose

INSTRUCTIONS
Click the Launch Video button to view each recording. After watching a recording, click the Attestation button to confirm your participation. Once all recordings have been viewed and attested to, complete the final module—the Evaluation. After submitting the Evaluation, you will have the option to purchase a Continuing Education (CE) Certificate.

To purchase a CE certificate:

1. Click on the Evaluations & Certificates tile in MY CE portal.
2. Select Download Certificate button.
3. Select Pay CE Certificate Fee button and follow the prompts to pay.

View more resources and information by visiting the Stanford Down Syndrome Research Center and The Matthew Foundation.
Down Syndrome and Alzheimer's Disease by Mark Mapstone, PhD

Description: Nearly all adults with Down syndrome will eventually develop Alzheimer's disease and have an earlier onset at age 50-56. Recognizing the disease, clinical assessments and warning signs, approved treatments, managing co-morbidities, prevention, and coordinating care with Neurology is essential for PCPs, APPs and others. 

View/Download Presentation.

Launch Video Attestation
Adult with Down Syndrome Medical Concerns and Aging by Peter Bulova, MD

Description: Knowing how to recognize and manage many medical disorders of adults with Down syndrome is essential in their care. The diseases most common in people with Down syndrome are different than the general population and also different than those with other intellectual and developmental disabilities (IDD). The differential diagnosis is not the same. Also, adults with Down syndrome age more rapidly than the general population. "Diagnostic overshowing" (assuming a complaint “is just the Down Syndrome”) or believing common medical conditions are the same as those with other IDDs is widespread and can lead to diagnostic errors with serious consequences. Recent Clinical Guidelines provide instruction on screening and treatment. Again, this requires entertaining a different set of possibilities and approaches.

View/Download Presentation.


Launch Video Attestation
Mental Wellness in Down Syndrome: Embracing Strengths, Gifts, and Challenges by Dennis McGuire, PhD

Description: Behavior patterns in adults with Down syndrome are widely misunderstood by medical care providers who don’t know how to interact with people with DS and may misinterpret situations as abnormal or even psychotic. Predictable patterns of behavior, thinking, social-emotional skills, language, and visual cues and memories are characteristic. These create challenges but also can offer advanatages. Activity patterns are often slower. “Diagnostic overshadowing” is common. This is particularly true for "self talk" and "the groove" manigfested by nearly all individuas with Down Syndrome. Understanding these qualities faculitate interactions and very effective solutions to functional problems. Individuals with Down Syndrome respond to different approaches for amelioration of depressions and anxiety.

View/Download Presentation.


Launch Video Attestation
Advances in Sleep Apnea Care: Cognitive and Health Implications by Rafael Pelayo, MD

Description: Obstructive sleep apnea syndrome [OSAS] is extremely common among adults with Down syndrome and usually more severe than the general population. If not treated to can cause a number of physical and mental problems, and impact development and function. A new device that can be implanted in the base of the tongue called “Inspire” offers an option for treatment other than CPAP.

View/Download Presentation.


Launch Video Attestation
Dental Health Updates and Concerns by Allen Wong, DDS

Description: Adults with Down syndrome often have unique dental and oral health needs. Providers of adults with DS need to understand the effects of Down syndrome on periodontal disease, dental caries, malocclution, tooth anomalies, on dental treatment.

View/Download Presentation.


Launch Video Attestation
Navigating Regional Centers by Ingrid Lin, MD, and Sheraden Nicholau

Description: Down syndrome care requires coordination with medical specialists, mental care providers, case managers and connections with community resources. Primary care providers needs to understand these agencies, what programs and services they provide and how to connect with them.

View/Download Presentation.


Launch Video Attestation
New Pathway to California High School Diploma and IEP Process by Kristin Wright, MS

Description: Individuals with Down syndrome are capable of considerable advancement in learning and education. However, they learn differently and specific teaching techniques should be used. Curriculum must be adapted. A high school diploma is a critical factor in finding employment. PCPs/NPs and PAs teach in their care and should know this. This is another example of the need to understand community opportunities and resources.

View/Download Presentation.


Launch Video EVALUATION + CLAIM CE FOR FULL COURSE

 

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