Race in Science, Technology, & Medicine Series - What Is a Population? Investigating Race, Ethnicity, and Ancestry in Genomics and Clinical Research

Friday, July 23, 2021, 12:00 AM - Monday, July 22, 2024, 11:59 PM

Internet Enduring Material Sponsored by Stanford University School of Humanities and Sciences. Presented by the Program in Science, Technology and Society.

This engaging presentation will address current topics in genomic research and will help learners understand how to define a “population”, the definitions of diversity measures, and how to incorporate race into research and medicine. Racial classification in clinical care will be discussed. An overview of research to precision medicine is provided and a discussion of race, ethnicity and ancestry in the clinical interpretation of genetic variants will provide insight into the importance of studying under represented populations to ensure that the benefits of research are distributed fairly and to maximize the potential for discovery.

Alice Popejoy is a Stanford postdoctoral scholar who studies biomedical data sciences, and speaks to the role — and pitfalls — of race, ethnicity and ancestry in research. In clinical research, scientists often invoke race, ethnicity and ancestry to better understand underlying factors that contribute to disease, even when the connection is not quite clear. This approach is prevalent in clinical genetics, a field of study that harnesses genetic testing to understand aspects of a patient’s personal health. But while race- or ancestry-based information can play an important role in health research — such as ensuring a particular clinical study represents diverse populations — its use in science can be misguided. Popejoy studies the intersection of public health and genetics. Including race, ethnicity or ancestry in a scientific study can produce misleading results that present sociocultural factors, such as race, as a biological cause of certain diseases — when, in fact, environmental factors or actual biology, such as genetic mutations, may underlie the disease.

     Release Date: July 23, 2021
     Expiration Date: July 22, 2024
     Estimated Time to Complete: 1 hour and 20 minutes
*Originally recorded on April 7, 2021.

AMA PRA Category 1 Credits™ (1.25 hours), AAPA Category 1 CME credits (1.25 hours), ANCC Contact Hours (1.25 hours), APA Continuing Education credits (1.25 hours), ASWB Continuing Education (ACE) credits (1.25 hours), Non-Physician Participation Credit (1.25 hours)

1. Determine how to incorporate race into research and medicine.

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American Nurses Credentialing Center (ANCC) 
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ASWB Approved Continuing Education Credit (ACE) – Social Work Credit 
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Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

Bibliography
Martinez-Martin N, Dasgupta I, Carter A, Chandler J, Kellmeyer P, Kreitmair K, Weiss A, Cabrera L
Ethics of Digital Mental Health During COVID-19: Crisis and Opportunities
JMIR Ment Health 2020;7(12):e23776
URL: https://mental.jmir.org/2020/12/e23776
DOI: 10.2196/23776

Podcast: Racism and Medical Education: Telling the Full Story
https://www.aamc.org/news-insights/podcast-racism-and-medical-education-telling-full-story

Dr. Rhea Boyd: Jacob Blake's police shooting highlights the hidden victims of police violence
Study after study has demonstrated the impact of police surveillance and violence on adult physical and mental health, but children are also affected — as victims and as witnesses.
https://www.nbcnews.com/think/opinion/jacob-blake-s-police-shooting-highlights-hidden-victims-police-violence-ncna1238574

Allegories on race and racism | Camara Jones | TEDxEmory
https://www.youtube.com/watch?v=GNhcY6fTyBM&t=360s

Popejoy et al._Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures.pdf

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