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Spinal Muscular Atrophy: Current Advances in Treatment and Recommendations for Evaluation and Rehabilitation (RECORDED SESSIONS)


Spinal Muscular Atrophy: Current Advances in Treatment and Recommendations for Evaluation and Rehabilitation (RECORDED SESSIONS) Banner

  • Overview
  • Faculty
  • Brochure
  • Support
  • Begin


Date & Location
Wednesday, April 1, 2020, 12:00 AM - Friday, March 31, 2023, 12:00 AM

Overview
Internet Enduring Material Sponsored by Stanford University School of Medicine. Presented by the Division of Neuromuscular Medicine at Stanford University School of Medicine.

This online course is provided to first, teach healthcare providers on the clinical perspective of spinal muscular atrophy (SMA) including the broad phenotypic spectrum of pediatric and adult patients, evidence of natural history of the disease, new updates to standards of care, clinical outcome measures/standardized assessments, and the influence of therapies both approved and in development; and second, to support healthcare providers, outside of specialized SMA centers, to manage rehabilitation programs and evaluate patient progress using validated standardized clinical assessments in SMA.

At the end of this course, participants will have an understanding of the current advances in treatment as well as recommendations for the evaluation and rehabilitation management in SMA. Attendees will comprehend how to relate the standards of care to clinical practice and assess SMA patients with standardized clinical measures.

Target Audience
This is an international program designed for physicians, nurses, advance practice nurses (APNs), professional nurses (RNs) physician assistants, physical therapists, administrators, researchers, social workers, allied health professionals, occupational therapists, speech language pathologists, residents, fellows and medical students specializing in Neurology, Pediatrics, and Neuromuscular specialties. 

Registration

  Release Date: April 1, 2020
  Expiration Date: April 1, 2023
  Estimated Time to Complete: 13.75 hours
  Registration Fee: FREE 
*Originally recorded on 12/06/2019 and 12/07/2019.

Want to attend live?  Stanford University 2nd Annual Spinal Muscular Atrophy Continuing Medical Education Conference on December 4 – 5, 2020.  Learn more HERE.


Credits
AMA PRA Category 1 Credits™ (13.75 hours), Non-Physician Participation Credit (13.75 hours)

Target Audience
Specialties - Neurology , Pediatrics
Professions - Fellow/Resident, Non-Physician, Physician, Student

Objectives
At the conclusion of this activity, participants should be able to:

  1. Summarize the clinical perspectives of sma including disease pathology, phenotypic spectrum, and evidence of natural history.
  2. Choose and organize suitable rehabilitation programs based on available standards of care recommendations.
  3. Determine and apply appropriate clinical outcome measures based on age and function with correct administration and scoring of motor performance using these common sma measures.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Credit Designation

American Medical Association (AMA)
Stanford Medicine designates this Enduring Material for a maximum of 13.75 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.


Additional Information

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, please contact us.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: http://lane.stanford.edu/portals/cultural.html

Reference/Bibliography List
Click HERE to view audience Q&A submitted during the live conference.



Disclosure Summary

 The Stanford University School of Medicine adheres to ACCME Criteria, Standards and Policies regarding industry support of continuing medical education.  There are no relevant financial relationships with ACCME-defined commercial interests for anyone who was in control of the content of this activity, except:

John W. Day, MD, PhDAdvisory Board &
Contracted Research   
Biogen, Roche/ Genentech, AveXis, Novartis, Cytokinetics, Scholar Rock
Basil Darras, MDAdvisory Board 

AveXis, Biogen, Cytokinetics, Dynacure, Roche, Genentech, Sarepta


Speaker’s BureauBiogen
                                                                                                                                                                                                         Contracted Research                                                                                                                                                             National Institute of Neurological Disorders and Stroke, the Slaney Family Fund for SMA, Working on Walking Fund, the SMA Foundation; CureSMA, Ionis Pharmaceuticals, Inc. and Biogen during ENDEAR, CHERISH, CS2, CS12, CS11 studies, AveXis, Cytokinetics, Fibrogen, PTC, Roche, Santhera, Sarepta, and Summit.
Sally Dunaway Young, PT, DPT Advisory BoardBiogen, Scholar Rock

Consulting FeesBiogen, Ionis, Scholar Rock, Cure SMA
Tina Duong, MPTConsulting FeesRoche, Biogen, Scholar Rock, Cytokinetics, Novartis, Audentes
 Advisory BoardRoche, Biogen, Cytokinetics, Audentes
Richard S. Finkel, MDAdvisory Board & Contracted ResearchAveXis, Biogen, Roche
Richard Gee, PTAdvisory Board & Consulting FeesBiogen Pharmaceutical
Allan M. Glanzman, PT, DPTIntellectual Property rightsAudentis, Roche, Biogen, AveXis
 Consulting FeesAudentis, Aspa
Oscar Mayer, MDAdvisory Board & Speaker’s BureauBiogen

View all faculty and speakers in the Brochure.



Member Information
Role in activity
Nature of Relationship(s) / Name of Ineligible Company(s)
Faculty Photos
Sally Dunaway Young, PT, DPT
Physical Therapist, Clinical Research Manager, Division of Neuromuscular Medicine
Stanford University Medical Center
Planner
Advisory Board-Biogen Idec|Advisory Board-Roche|Advisory Board-Scholar Rock|Consulting fees-CureSMA

COMMERCIAL SUPPORT ACKNOWLEDGEMENT
This CME Activity is supported in part by educational grants from AveXis, Inc., Biogen, Cytokinetics, Inc., Genentech, Ionis Pharmaceuticals and Scholar Rock, Inc.

NON-COMMERCIAL SUPPORT ACKNOWLEDGEMENT

This CME Activity is supported in part by and educational grant from Muscular Dystrophy Association.
 

Spinal Muscular Atrophy 2019 Conference Online Playlist

INSTRUCTIONS: Click "LAUNCH WEBSITE” to begin each presentation. After successful completion of all presentations, please complete the attestation and evaluation for credit(s) to be awarded.  Your credit transcript will be available to view and download immediately in MY CE portal.

Some presentation slides have been modified due to copyright permissions including patient photographs and videos as well as published manuscript graphics. Please refer to citations for missing content.


Welcome Day 1 & Introductions
Launch Video
SMA Pathophysiology, Diagnosis and Clinical Presentations
Presented by Darryl C. De Vivo, MD and John Day, MD, PhD
Launch Video
Approved Treatment and Upcoming Therapeutic Strategies
Presented by Perry Shieh, MD, PhD and Basil Darras, MD
Launch Video
Infantile Onset Spinal Muscular Atrophy
Presented by Carolina Tesi Rocha, MD and Richard S. Finkel, MD
Launch Video
Later Onset Spinal Muscular Atrophy
Presented by Julie Parsons, MD and Basil Darras, MD
Launch Video
Pre symptomatic Spinal Muscular Atrophy
Presented by Richard S. Finkel, MD and Darryl C. De Vivo, MD 
Launch Video
Managing Chronic Adults with Spinal Muscular Atrophy
Presented by Connie Wolford, MSN, FNP-BC and Jacinda Sampson,MD,PhD
Launch Video
Respiratory Management in Spinal Muscular Atrophy
Presented by Oscar Mayer, MD and MyMy Buu, MD, FAAP
Launch Video
The Patient Experience
Presented by Moderators: Ava Lin, MD and Carly Siskind, MS, LCGC 
Launch Video
Panel Discussion & Closing Recap Day 1
Launch Video
Welcome Day 2
Launch Video
Clinical Evaluations and Assessments for Spinal Muscular Atrophy
Presented by Tina Duong, MPT
Launch Video
Updated Rehabilitation Standards of Care
Presented by Richard Gee, PT
Launch Video
Exercise Recommendations in Spinal Muscular Atrophy
Presented by Jacqueline Montes, PT, EdD, NCS
Launch Video
Children’s Hospital of Philadelphia Infant Test of Neuromuscular Disorders CHOP INTEND
Presented by Allan M. Glanzman, PT, DPT and Leslie Nelson, PT, PhD, OCS 
Launch Video
Hammersmith Infant Neurological Exam – Part 2 Motor Milestones
Presented by Basil Darras, MD and Richard S. Finkel, MD

Launch Video
Hammersmith Functional Motor Scale Expanded (HFMSE)
Presented by Sally Dunaway Young, PT, DPT and Terri Carry, PT
Launch Video
Revised Upper Limb Module RULM
Presented by Amy Pasternak, PT, DPT, PCS and Matthew Civitello, MPT
Launch Video
Six Minute Walk Test
Presented by Jacqueline Montes, PT, EdD, NCS and Leslie Nelson, PT, PhD OCS
Launch Video
Community Resource Discussion – Network Initiatives
Presented by  Sally Dunaway Young,PT, DPT and Jacqueline Montes, PT, EdD
Launch Video
Closing Remarks and Claim CME
Launch Video

 

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