Stanford University’s 6th Annual Neuromuscular Conference: Evaluating Bulbar Function in the Era of Disease Modifying Treatments


Stanford University’s 6th Annual Neuromuscular Conference: Evaluating Bulbar Function in the Era of Disease Modifying Treatments Banner

Add to Calendar Stanford University’s 6th Annual Neuromuscular Conference: Evaluating Bulbar Function in the Era of Disease Modifying Treatments 1/25/2025 7:00:00 AM 1/25/2025 6:30:00 PM America/Los_Angeles For More Details: https://stanford.cloud-cme.com/neuro2025 Description: Despite phenomenal advances in genetic treatments and disease modifying therapies for a number of neuromuscular (NM) diseases, there has been little systematic clinical evaluation of bulbar integrity in NM patients or any determination of how these therapies influence bulbar function. The scarcity of studies investigating disease modifying therapy effects on bulbar dysfunction can be attributed, in part, to the limited a... Li Ka Shing Center for Learning and Knowledge (LKSC) false MM/DD/YYYY


Date & Location
Saturday, January 25, 2025, 7:00 AM - 6:30 PM, Li Ka Shing Center for Learning and Knowledge (LKSC), Stanford, CA

Overview
Despite phenomenal advances in genetic treatments and disease modifying therapies for a number of neuromuscular (NM) diseases, there has been little systematic clinical evaluation of bulbar integrity in NM patients or any determination of how these therapies influence bulbar function.  The scarcity of studies investigating disease modifying therapy effects on bulbar dysfunction can be attributed, in part, to the limited availability of validated instruments for the structured assessment of swallowing and speech in NM patients.  These gaps in assessing bulbar integrity have clinically significant repercussions including the inability to systematically monitor function, facilitate timely rehabilitation intervention, monitor pharmaceutical treatment effects or initiate supplemental or compensatory treatments.  

There is a critical need for continuing medical education of health-care providers caring for individuals with NM disease to address the unmet needs in this population.  This conference will support the advancement of assessing bulbar function in children and adults by a variety of health professionals with expertise in this area and establish a foundation of evidence-based care to enhance understanding impairment of bulbar function and response to treatment. This effort will help define methods for screening and identification of early bulbar impairment, enhance the ability to define patterns of disease progression, and advance recommended clinical needs assessments and interventions, as well as evaluating response to therapies.

This 1-day conference will be conducted in person with interactive breakout sessions for in-person participants, as well as providing an option for virtual livestreaming of all formal presentations. The conference will include educational lecture series providing an opportunity to highlight the evidence of bulbar dysfunction features in neuromuscular disease, identifying the appropriate screening and evaluation tools, provide updates in research and the translation to clinical care, and discuss therapeutic interventions for bulbar dysfunction.  Didactics will be followed by interactive breakout sessions to examine multi-disciplinary and specialty management of bulbar function and empower the clinician using real-world NM cases including ALS, SMA, DM1, DMD, Friedreich’s Ataxia, & Pompe Disease.  These sessions will include opportunities for shared discussion that clarify the perspectives of patients, caregivers, multi-disciplinary providers, and key stakeholders.

At the end of this conference, participants will understand the applicable assessments of bulbar physiology and function for all individuals with NM disease. Attendees will recognize opportunities to optimize clinical interventions and outcomes as well as reflect on the patient perspective.


Registration

There are two ways to attend this hybrid activity: in-person or virtually.

1. In-Person
Registration Fees (Includes course materials, breakfast and lunch, and a certificate of participation)

Early Bird Rates:
Physician - $250
International Physician - $140
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $200
Industry - $350
Trainee/Resident - $75

Rates after 12/28/2024:
Physician - $300
International Physician - $180
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $250
Industry - $400
Trainee/Resident - $75

2. Virtually
Registration Fees (Include course material and a certificate of participation. You will receive your Zoom link the week prior to the conference.)

Virtual Early Bird Rates:
Physician - $250
International Physician - $140
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $200
Industry - $350
Trainee/Resident - $75

Virtual Rates after 12/28/2024:
Physician - $300
International Physician - $180
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $250
Industry - $400
Trainee/Resident - $75

Registration fees may be paid by credit card - Visa, MasterCard, or American Express. Your email address is used for critical information, including registration confirmation, evaluation, and certificate. Be sure to include an email address that you check frequently.

STAP-eligible employees can use STAP funds towards the registration fees for this activity.  Complete the STAP Reimbursement Request Form and submit to your department administrator. 

 


Credits
AMA PRA Category 1 Credits™ (7.75 hours), ANCC Contact Hours (7.75 hours), Non-Physician Participation Credit (7.75 hours)

Target Audience
Specialties - Neurology , Occupational Therapy, Pediatrics, Physical Therapy, Speech Language Pathology
Professions - Advance Practice Nurse (APN), Fellow/Resident, Non-Physician, Nurse, Occupational Therapist, Physical Therapist, Physician, Registered Nurse (RN), Student

Objectives
At the conclusion of this activity, learners should be able to:

  1. Describe the physiological aspects of bulbar dysfunction and appropriate assessments of bulbar impairment in NM individuals.
  2. Optimize clinical interventions based on the assessment of bulbar function to facilitate timely rehabilitation and improve overall outcomes for individuals with NM disease.
  3. Examine the current research evidence which can support translation to clinical care provision in NM disease.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this Live Activity for a maximum of 7.75 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this Live Activity for a maximum of 7.75 ANCC contact hours.  

Stanford Health Care Department of Rehabilitation is an approved provider for physical therapy, occupational therapy, and speech therapy for courses that meet the requirements set forth by the respective California Boards. This course is approved for 7.75 hour(s) CEU for PT, OT, and SLP.



Additional Information

Cancellation Policy
Live Activities: Cancellations received in writing no less than 20 days before the course will be refunded. No refunds will be made on cancellations received after that date. Self-paced Activities: No refunds will be made on cancellation requests after a learner accesses any part of the course content. Any cancellations refunded will less a 20% administrative fee. Please send cancellation requests to [email protected].

Stanford University School of Medicine reserves the right to cancel or postpone this program if necessary; in the event of cancellation, course fees will be fully refunded. We are not responsible for other costs, such as non-refundable airline tickets or hotel penalties.

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

For activity related questions, please contact
     Name: Melissa Schwartz
     Title: Events Project Manager
     Email: [email protected]

For CME general questions, please contact 
     Email: [email protected]