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Stanford University's 5th Annual Neuromuscular Conference: Spinal Muscular Atrophy & Duchenne Muscular Dystrophy - Lessons Learned in Genetic Treatments (Recorded Sessions)


Stanford University's 5th Annual Neuromuscular Conference: Spinal Muscular Atrophy & Duchenne Muscular Dystrophy - Lessons Learned in Genetic Treatments (Recorded Sessions) Banner

  • Overview
  • Faculty
  • Sponsors
  • Support
  • Begin


Date & Location
Friday, February 2, 2024, 7:00 AM - Monday, February 1, 2027, 7:00 AM, On Demand

Overview
Internet Enduring Material Sponsored by Stanford University School of Medicine. Presented by the Division of Neuromuscular Medicine at Stanford University School of Medicine. 

New advances in genetic treatments require continuing medical education for all clinicians caring for individuals with neuromuscular disorders to assure that all eligible patients receive treatments quickly, and to optimize outcomes. Genetic treatments, supplemental treatments, regenerative approaches, and progress toward fetal therapy make this an exciting moment to discuss clinical-decision making.  Our goal is to improve use of these powerful new treatments and optimize patient management by including physicians, therapists, nurses, and all providers whether or not they see patients as part of specialized neuromuscular centers. 

This activity has the following goals: (1) review and understand new treatment developments over the past year; (2) examine novel insights and clinical reasoning that combine treatments and integrate rehabilitative management; and (3) use specific features of SMA & DMD to model optimal care, helping all providers understand evidence-based medical and rehabilitation approaches, whether or not they are members of specialized Neuromuscular care teams.

The activity will include an educational lecture series providing an overview of the new advances in SMA & DMD disease modifying therapies including gene correction and other course-modifying treatments, approaches to augment function that can be combined with genetic treatments, and developing regenerative and fetal treatments. Complex topics including, disability rights, fatigue and managing orthopedic conditions will be discussed.  At the end of this activity, participants will understand the use of genetic treatments, supplementary functional improvements, and other medical and rehabilitative approaches for SMA & DMD that provide models for optimizing neuromuscular care. Attendees will recognize opportunities to optimize clinical interventions and outcomes.

Registration

Release Date: February 2, 2024
Expiration Date: February 2, 2027
Estimated Time to Complete: ~11 hours
Registration Fee: FREE 
*Originally recorded on 12/8/2023 - 12/9/2023.


Credits
AMA PRA Category 1 Credits™ (14.50 hours), ANCC Contact Hours (14.50 hours), Non-Physician Participation Credit (14.50 hours)

Target Audience
Specialties - Neurology

Objectives
At the conclusion of this activity, learners should be able to:

  1. Identify new advances in genetic and non-genetic treatments for SMA & DMD as well as anticipated developments that will further impact disease trajectories and outcomes.
  2. Distinguish the unique disease factors influencing both fatigue and orthopedic health in individuals with SMA & DMD.
  3. Utilize medical and rehabilitative interventions determined by evidence-based recommendations and established standards of care for best outcomes.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 

Stanford Medicine designates this Enduring Material for a maximum of 14.50 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this Live Activity for a maximum of 14.50 ANCC contact hours.  

Stanford Health Care Department of Rehabilitation is an approved provider for physical therapy, occupational therapy, and speech language pathology for courses that meet the requirements set forth by the respective California Boards. This course is approved for 14.50 hours CEU for PT, OT, and SLP.


Additional Information

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

Bibliography
View the Course Bibliography HERE

For CME general questions, please contact 
 
   Email: [email protected]



Mitigation of Relevant Financial Relationships


Stanford Medicine adheres to the Standards for Integrity and Independence in Accredited Continuing Education.

There are no relevant financial relationships with ACCME-defined ineligible companies for anyone who was in control of the content of this activity, except those listed in the table below. All of the relevant financial relationships listed for these individuals have been mitigated.



Member Information
Role in activity
Nature of Relationship(s) / Name of Ineligible Company(s)
Faculty Photos
Ana Tesi Tesi Rocha, MD
Clinical Associate Professor, Pediatric Neurology & Neurological Science
Stanford University Medical Center
Co-Course Director
Honoraria-Novartis AG (Relationship has ended)|Advisor-UCB pharma (Relationship has ended)|Advisor-Catalyst (Relationship has ended)|Honoraria-Roche (Relationship has ended)|Advisor-Sarepta (Relationship has ended)
John W Day, MD, PhD
Professor of Neurology and Pediatrics (Genetics) and by courtesy, Pathology
Stanford University Medical Center
Course Director
Grant or research support-Astellas|Grant or research support-CureSMA|Grant or research support-Muscular Dystrophy Association|Grant or research support-AnnJi|Grant or research support-NMD Pharma|Grant or research support-Biogen|Grant or research support-Ionis Pharmaceuticals|Grant or research support-Novartis Gene Therapies|Grant or research support-Roche|Grant or research support-Sarepta Therapeutics|Grant or research support-Scholar Rock|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Avidity Therapeutics|Membership on Advisory Committees or Review Panels, Board Membership, etc.-PepGen|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Biogen|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Novartis Gene Therapies|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Roche/Genentech Pharmaceuticals|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Sarepta Therapeutics|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Scholar Rock|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Muscular Dystrophy Association|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Myotonic Dystrophy Foundation|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Foundation Building Strength for Nemaline Myopathy|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Cure CMD|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Epirium Bio|Royalties or Patent Beneficiary-Athena Diagnostics
Faculty Photos
Sally Dunaway Young, PT, DPT
Physical Therapist, Clinical Research Manager, Division of Neuromuscular Medicine
Stanford University Medical Center
Planner
Advisor-Biogen Idec|Advisor-Roche|Advisor-Scholar Rock (Relationship has ended)|Consulting Fee-Cure SMA|Grant or research support-Cure SMA
Faculty Photos
Tina Duong, PT, PhD
Physical Therapist, Sr. Research Scientist, Division of Neuromuscular Medicine
Stanford University Medical Center
Planner
Advisor-Biogen Idec|Advisor-Roche|Advisor-Pfizer, Inc.|Advisor-Astellas|Consulting Fee-Sarepta|Advisor-Genentech, Inc.|Consulting Fee-Roche|Consulting Fee-Trinds|Consulting Fee-Genentech, Inc.|Consulting Fee-Biogen Idec|Consulting Fee-Dyne|Membership on Advisory Committees or Review Panels, Board Membership, etc.-CureSMA Medical Advisory Council|Membership on Advisory Committees or Review Panels, Board Membership, etc.-DuchenneUK|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Scholar Rock
Richard S Gee, PT
Physical Therapist
Lucile Packard Children’s Hospital at Stanford
Planner
Consulting Fee-Biogen Idec|Consulting Fee-Roche
Dong Nguyen, MA
Administrative Associate
Stanford University
Planner
Nothing to disclose
Diana H Tran, MPH
Research Administrator
Stanford University
Planner
Nothing to disclose
Faculty Photos
Connie Wolford, MSN, FNP-BC
Nurse Practitioner
Stanford University School of Medicine
Planner
Speakers Bureau-Biogen Idec|Advisor-Biogen Idec
Maxwell Greene, MD
Clinical Assistant Professor, Neurology & Neurological Sciences
SHC
Reviewer
Nothing to disclose

This CME Activity is supported in part by educational grants from Dyne Therapeutics, Inc., Genentech, Inc., Muscular Dystrophy Association, Parent Project Muscular Dystrophy, Inc., and Scholar Rock Inc.

Stanford University's 5th Annual Neuromuscular Conference: Spinal Muscular Atrophy & Duchenne Muscular Dystrophy - Lessons Learned in Genetic Treatments (Recorded Sessions)

INSTRUCTIONS: Click "Launch Video” to begin each presentation. After successful completion of all presentations, please complete the attestation and evaluation for credit(s) to be awarded.  Your credit transcript will be available to view and download immediately in MY CE portal.
Welcome & Introductions
John W Day, MD, PhD
Carolina Tesi Rocha, MD
Launch Video
Disease Modifying Therapies: New Advances, Combination and Regenerative Therapies
Leslie Nelson, PT, PhD
Julie Parsons, MD
Russell Butterfield, MD, PhD
Jordan Abbott, MD
Launch Video
Gene Treatment Panel and Q&A
Jordan Abbott, MD
Russell Butterfield, MD, PhD
Leslie Nelson, PT, PhD
Julie Parsons, MD
John W Day, MD, PhD (Moderator)
Carolina Tesi Rocha, MD (Moderator)
Launch Video
Fetal Therapy Developments
Yair Blumenfeld, MD
Launch Video
Sexual and Urological Perspectives
Cynthia Gagnon, PhD, OT
Emily Wolinsky, MA, MEd
Launch Video
Clinical Reasoning in Medical Management
Cara Terese Piccoli, MD
Connie Wolford, MSN, FNP-BC
Launch Video
Knowing Disability Rights
L. Vance Taylor, MA
Rebecca Williford, JD
Launch Video
Open Discussion
All Faculty
Launch Video
Understanding Fatigue and Fatigability
Sally Dunaway Young, PT, DPT
Bart Bartels, PhD
Tanja Taivassalo, PhD
Launch Video
Scoliosis and Chest Wall Changes: Orthopedic and Pulmonary Concerns
Matthew A Halanski, MD
Oscar Henry Mayer, MD
Launch Video
Contractures: Features & Management
Laurey Brown, DPT
Tina Duong, PT, PhD
Launch Video
Endocrine and Bone Health Issues
Leanne M Ward, MD
David Weber, MD
Launch Video
Clinical Reasoning in Rehabilitation Management
Ria Pal, MD
Sally Dunaway Young, PT, DPT
Launch Video
Claim CME
After you attest to having completed all the course content, you will move onto the course evaluation, and then receive your certificate and/or credit transcript.
Claim CE

Special Thank You to our Sponsors!
Avidity Biosciences, CureDuchenne & Catalyst Pharmaceuticals!

 

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