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Pediatric Grand Rounds (RECORDING) Treatment of Infants with Robin Sequence and Other Craniofacial Malformations


Pediatric Grand Rounds (RECORDING) Treatment of Infants with Robin Sequence and Other Craniofacial Malformations Banner

  • Overview
  • Faculty
  • Begin


Date & Location
Friday, December 16, 2022, 12:00 AM - Friday, December 15, 2023, 11:59 PM

Overview

This presentation is a recording of a Stanford Pediatric Grand Rounds Session.  World-renowned experts will present the latest research, practice guidelines, and treatment protocols to advance best practices in the care of pediatric patients. These online recordings will provide pediatricians and family physicians with up-to-date clinical information on a wide range of clinical issues encountered in daily pediatric practice.  This session will familiarize  the  audience  with  current  treatment  approaches  for upper airway obstruction and feeding problems. We also present recent evidence on the effectiveness of afunctional treatment approach centered around a modified palatal plate that opens the airway and allows infants to breathe freely and gain weight normally while fed by mouth.


Registration

  Release Date: December 16, 2022
  Expiration Date: December 15, 2023
  Estimated Time to Complete: 1.0 hour
  Registration Fee: FREE
 *Originally recorded 09/23/2022.


Credits
AMA PRA Category 1 Credits™ (1.00 hours), Non-Physician Participation Credit (1.00 hours)

Target Audience
Specialties - Pediatrics

Objectives
At the conclusion of this activity, participants should be able to:

  1. Identify ways medical education harms learners.
  2. Discuss ideas to mitigate these harms.
  3. Gain knowledge on a new, functional treatment paradigm to RS and its advantages over traditional. approaches
  4. To sensitize the audience for the importance of mandibular catch-up growth in RS.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this Enduring Material for a maximum of 1.00 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.


Additional Information

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require accommodations, please contact the CME Conference Coordinator.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

References/Bibliography

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Bacher, M., Linz, A., Buchenau, W., Arand, J., Krimmel, M., Poets, C., & Poets, C. (2010).
Therapeutisches Vorgehen bei Pierre-Robin-Sequenz [Treatment of infants with Pierre
Robin sequence]. Laryngo- rhino- otologie, 89(10), 621–629.
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Bacher, M., Sautermeister, J., Urschitz, M. S., Buchenau, W., Arand, J., & Poets, C. F.
(2011). An oral appliance with velar extension for treatment of obstructive sleep apnea in
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Choo, H., Galera, R. I., Balakrishnan, K., Lin, H. C., Ahn, H., Lorenz, P., Khosla, R. K., Profit,
J., Poets, C. F., & Lee, J. S. (2022). Disruptive Therapy Using a Nonsurgical Orthodontic
Airway Plate for the Management of Neonatal Robin Sequence: 1-Year Follow-up. The
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Flores, R. L., Tholpady, S. S., Sati, S., Fairbanks, G., Socas, J., Choi, M., & Havlik, R. J.
(2014). The surgical correction of Pierre Robin sequence: mandibular distraction
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Greathouse, S. T., Costa, M., Ferrera, A., Tahiri, Y., Tholpady, S. S., Havlik, R. J., & Flores, R.
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Hammoudeh, J., Bindingnavele, V. K., Davis, B., Davidson Ward, S. L., Sanchez-Lara, P. A.,
Kleiber, G., Nazarian Mobin, S. S., Francis, C. S., & Urata, M. M. (2012). Neonatal and
infant mandibular distraction as an alternative to tracheostomy in severe obstructive sleep
apnea. The Cleft palate-craniofacial journal : official publication of the American Cleft
Palate-Craniofacial Association, 49(1), 32–38. https://doi.org/10.1597/10-069

Han, K. D., Seruya, M., Oh, A. K., Zalzal, G. H., & Preciado, D. A. (2012). "Natural"
decannulation in patients with Robin sequence and severe airway obstruction. The Annals
of otology, rhinology, and laryngology, 121(1), 44–50.
https://doi.org/10.1177/000348941212100108

Heaf, D. P., Helms, P. J., Dinwiddie, R., & Matthew, D. J. (1982). Nasopharyngeal airways
in Pierre Robin Syndrome. The Journal of pediatrics, 100(5), 698–703.
https://doi.org/10.1016/s0022-3476(82)80567-2

Hong, P., Bezuhly, M., Mark Taylor, S., Hart, R. D., Kearns, D. B., & Corsten, G. (2012).
Tracheostomy versus mandibular distraction osteogenesis in Canadian children with
Pierre Robin sequence: a comparative cost analysis. Journal of otolaryngology - head &
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41(3), 207–214.

Kochel, J., Meyer-Marcotty, P., Wirbelauer, J., Böhm, H., Kochel, M., Thomas, W., Bareis,
U., Hebestreit, H., Speer, C., & Stellzig-Eisenhauer, A. (2011). Treatment modalities of
infants with upper airway obstruction--review of the literature and presentation of novel
orthopedic appliances. The Cleft palate-craniofacial journal : official publication of the
American Cleft Palate-Craniofacial Association, 48(1), 44–55.
https://doi.org/10.1597/08-273

Kosyk, M. S., Carlson, A. R., Zapatero, Z. D., Kalmar, C. L., Swanson, J. W., Bartlett, S. P., &
Taylor, J. A. (2021). Cleft Palate Repair in Robin Sequence following Mandibular
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Kukkola, H. K., Vuola, P., Seppä-Moilanen, M., Salminen, P., & Kirjavainen, T. (2021). Pierre
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https://doi.org/10.1136/archdischild-2020-320527

Leboulanger, N., Picard, A., Soupre, V., Aubertin, G., Denoyelle, F., Galliani, E., Roger, G.,
Garabedian, E. N., & Fauroux, B. (2010). Physiologic and clinical benefits of
noninvasive ventilation in infants with Pierre Robin sequence. Pediatrics, 126(5),
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Li, K. K., Riley, R. W., & Guilleminault, C. (2000). An unreported risk in the use of home
nasal continuous positive airway pressure and home nasal ventilation in children:
mid-face hypoplasia. Chest, 117(3), 916–918. https://doi.org/10.1378/chest.117.3.916

Maas, C., & Poets, C. F. (2014). Initial treatment and early weight gain of children with
Robin Sequence in Germany: a prospective epidemiological study. Archives of disease in
childhood. Fetal and neonatal edition, 99(6), F491–F494.
https://doi.org/10.1136/archdischild-2014-306472

Müller-Hagedorn, S., Buchenau, W., Arand, J., Bacher, M., & Poets, C. F. (2017). Treatment
of infants with Syndromic Robin sequence with modified palatal plates: a minimally
invasive treatment option. Head & face medicine, 13(1), 4.
https://doi.org/10.1186/s13005-017-0137-1

Murage, K. P., Costa, M. A., Friel, M. T., Havlik, R. J., Tholpady, S. S., & Flores, R. L. (2014).
Complications associated with neonatal mandibular distraction osteogenesis in the
treatment of Robin sequence. The Journal of craniofacial surgery, 25(2), 383–387.
https://doi.org/10.1097/SCS.0000000000000640

Pielou W. D. (1967). Non-surgical management of Pierre Robin syndrome. Archives of
disease in childhood, 42(221), 20–23. https://doi.org/10.1136/adc.42.221.20

Poets, C. F., Abadie, V., Breugem, C., Wallis, C., Abel, F., Chalouhi, C., Kruisinga, F., Sorg, A.
L., & Wiechers, C. (2021). Managing infants with craniofacial malformations - Where to
go next?. Seminars in fetal & neonatal medicine, 26(6), 101289.
https://doi.org/10.1016/j.siny.2021.101289

Poets, C. F., & Bacher, M. (2011). Treatment of upper airway obstruction and feeding
problems in Robin-like phenotype. The Journal of pediatrics, 159(6), 887–892.
https://doi.org/10.1016/j.jpeds.2011.07.033

Poets, C. F., Koos, B., Reinert, S., & Wiechers, C. (2019). The Tübingen palatal plate
approach to Robin sequence: Summary of current evidence. Journal of
cranio-maxillo-facial surgery : official publication of the European Association for
Cranio-Maxillo-Facial Surgery, 47(11), 1699–1705.
https://doi.org/10.1016/j.jcms.2019.08.002

Poets, C. F., Maas, C., Buchenau, W., Arand, J., Vierzig, A., Braumann, B., &
Müller-Hagedorn, S. (2017). Multicenter study on the effectiveness of the pre-epiglottic
baton plate for airway obstruction and feeding problems in Robin sequence. Orphanet
journal of rare diseases, 12(1), 46. https://doi.org/10.1186/s13023-017-0602-8

Schettler, D., & Koch, H. (1974). Studie am wachsenden Unterkiefer während und nach
kieferorthopädisch-chirurgischer Extensionsbehandlung bei Kindern mit angeborener
Mikrogenie [Growing jaw during and after orthopedic-surgical extension in children with
congenital microgenia]. Fortschritte der Kiefer- und Gesichts-Chirurgie, 18, 166–169.

Thurzo, A., Šufliarsky, B., Urbanová, W., Cverha, M., Strunga, M., & Varga, I. (2022). Pierre
Robin Sequence and 3D Printed Personalized Composite Appliances in Interdisciplinary
Approach. Polymers, 14(18), 3858. https://doi.org/10.3390/polym14183858

Wagener, S., Rayatt, S. S., Tatman, A. J., Gornall, P., & Slator, R. (2003). Management of
infants with Pierre Robin sequence. The Cleft palate-craniofacial journal : official
publication of the American Cleft Palate-Craniofacial Association, 40(2), 180–185.
https://doi.org/10.1597/1545-1569_2003_040_0180_moiwpr_2.0.co_2

Wiechers, C., Buchenau, W., Arand, J., Oertel, A. F., Peters, K., Müller-Hagedorn, S., Koos,
B., & Poets, C. F. (2019). Mandibular growth in infants with Robin sequence treated with
the Tübingen palatal plate. Head & face medicine, 15(1), 17.
https://doi.org/10.1186/s13005-019-0200-1

Wiechers, C., Iffländer, R., Gerdes, R., Ciuffolotti, M., Arand, J., Weise, C., Peters, K.,
Grandke, B., Reinert, S., Koos, B., & Poets, C. F. (2021). Retrospective study on growth
in infants with isolated Robin sequence treated with the Tuebingen Palate Plate. Orphanet
journal of rare diseases, 16(1), 338. https://doi.org/10.1186/s13023-021-01959-2

Xepapadeas, A. B., Weise, C., Frank, K., Spintzyk, S., Poets, C. F., Wiechers, C., Arand, J., &
Koos, B. (2020). Technical note on introducing a digital workflow for newborns with
craniofacial anomalies based on intraoral scans - part I: 3D printed and milled palatal
stimulation plate for trisomy 21. BMC oral health, 20(1), 20.
https://doi.org/10.1186/s12903-020-1001-4

For CME general questions, please contact 
 
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Mitigation of Relevant Financial Relationships


Stanford Medicine adheres to the Standards for Integrity and Independence in Accredited Continuing Education. 

There are no relevant financial relationships with ACCME-defined ineligible companies for anyone who was in control of the content of this activity, except those listed in the table below. All of the relevant financial relationships listed for these individuals have been mitigated.



Member Information
Role in activity
Nature of Relationship(s) / Name of Ineligible Company(s)
Alan R. Schroeder, MD
Clinical Professor
Stanford University
Co-Course Director and Reviewer
Nothing to disclose
Olivera Marsenic Couloures, MD
LPCH
Course Director and Reviewer
Nothing to disclose
Christian F. Poets, MD
Prof.
Tuebingen University Hospital
Germany
Faculty
Honoraria-Chiesi Farmaceutici (Relationship has ended)|Honoraria-Sanofi-Pasteur (Relationship has ended)|Honoraria-Masimo Inc. (Relationship has ended)
Debra Babcock, MD
Stanford Childrens (PCHA)
Planner
Nothing to disclose
Faculty Photos
Lisa Jo Chamberlain, MD
Professor of Pediatrics – General Pediatrics
Stanford Children's Health
Planner
Nothing to disclose
Faculty Photos
Baraka Dechelle Floyd, MD
Clinical Assistant Professor and Associate Chair for Diversity, Equity, and Inclusion
Stanford University School of Medicine
Planner
Nothing to disclose
Charles Gawad, MD, PhD
Associate Professor
Stanford
Planner
Ownership-BioSkryb Genomics
Faculty Photos
Allison Guerin, EdD
Stanford
Planner
Nothing to disclose
Faculty Photos
Mary Beth Leonard, MD, MSCE
Arline and Pete Harman Professor and Chair, Department of Pediatrics
Stanford University
Planner
Nothing to disclose
Ryan Lion, MD, MS
Stanford University
Planner
Nothing to disclose
Lauren E O'Brien, MD
Clinical Assistant Professor
LPCH
Planner
Nothing to disclose
Stephen J Roth, MPH, MD
Attending, Cardiovascular ICU
Lucile Packard Children's Hospital Stanford
Planner
Nothing to disclose
Faculty Photos
Stephanie Squires, MD
Pediatric Hospital Medicine Fellow
Stanford Health Care/ Stanford Children's Hospital
Planner
Nothing to disclose
Ke-You Zhang, MD
Stanford University
Planner

Pediatric Grand Rounds (RECORDING) Treatment of Infants with Robin Sequence and Other Craniofacial Malformations
INSTRUCTIONS:  Click the Launch YouTube button to watch the video on YouTube. Next, click the Attestation button. Attest to your participation, view results, and complete the evaluation. After successful completion, your credit transcript will be available to view and download immediately in MY CE portal. 

Can’t find the evaluation? Click the MY CE button and select the Evaluation and Certificates tile. Select the Complete Evaluation button associated with the activity. 
Launch YouTube

 

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