Stanford University 4th Annual Spinal Muscular Atrophy Conference: Clinical Complexities and Gaps of Care in the Genetic Treatment Era – Lessons Learned Treating SMA

Friday, December 2, 2022, 7:00 AM - Saturday, December 3, 2022, 5:00 PM, Li Ka Shing Center for Learning and Knowledge (LKSC), Palo Alto, CA

Continuing medical education and training in this era of disease-modifying treatments for the evolving SMA phenotype requires thoughtfulness for the most optimal outcomes.  With the implementation of the most current newborn screening guidelines, clinicians managing individuals with SMA require up-to-date knowledge on the treatment landscape, long-term outcomes, and clinical-decision making.  We intend to continue to enhance the knowledge and understanding of healthcare providers including physicians, specialists, physical therapists, occupational therapists, speech language pathologists, nurses, and providers not affiliated with specialized centers, in the clinical decision-making and medical and rehabilitative management of individuals with SMA.

This in-person 2-day conference (with an option for virtual livestreaming) is provided to (1) integrate new 2022 treatment developments as well as anticipated long-term outcomes into clinical decision-making; and (2) support healthcare providers, outside of specialized SMA centers, to manage individuals with SMA using evidence-based rehabilitation and medical strategies.

The conference will include an educational lecture series providing an overview of the SMA treatment landscape and beyond, long-term outcomes, re-evaluation, and monitoring and optimization for best outcomes for individuals identified via newborn screening.  Multi-disciplinary management including orthopedic, nutritional, and mental-health considerations will be discussed.  Didactics will be followed by shared break-out sessions including clinical case discussions.  These sessions will include opportunities for shared discussion on clinical decision-making for broad and complex phenotypes from both the rehabilitation aspect as well as to support multi-disciplinary providers.

At the end of this conference, participants will have strategies to utilize the current advances in therapeutic treatments, clinical, and rehabilitative management in SMA. Attendees will understand opportunities available to enhance clinical care, determine the most appropriate treatment, medical and rehabilitative interventions.

There are two ways to attend this hybrid activity:  in-person or virtually.

1. In-Person
Registration Fees (Includes course materials, breakfast and lunch, and a certificate of participation)

Early Bird Rates:
Physician - $250
International Physician - $140
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $200
Industry - $350
Trainee/Resident - $75

Rates after 11/4/2022:
Physician - $300
International Physician - $180
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $250
Industry - $400
Trainee/Resident - $75

2. Virtually
Registration Fees (Join virtually to watch Friday, December 2nd from 8am - 12pm PST and Saturday, December 3rd from 8am - 11:30am PST. Fees include course material and a certificate of participation. You will receive your Zoom link 1 week prior to the conference.)

Early Bird Rates:
Virtual Attendance - $140
Virtual Attendance: Trainee/Resident - $75

Rates after 11/4/2022:
Virtual Attendance - $180
Virtual Attendance: Trainee/Resident - $75

Tuition may be paid by Visa or MasterCard. Your email address is used for critical information, including registration confirmation, evaluation, and certificate. Be sure to include an email address that you check frequently.

STAP-eligible employees can use STAP funds towards the registration fees for this activity.  Complete the STAP Reimbursement Request Form and submit to your department administrator. 

AMA PRA Category 1 Credits™ (13.75 hours), ANCC Contact Hours (13.75 hours), Non-Physician Participation Credit (13.75 hours)

1. Summarize the current therapeutic treatments for individuals with SMA and the anticipated long-term outcomes.
2. Recognize and discuss the importance of optimization for best outcomes in the setting of newborn screening from a multi-disciplinary perspective.
3. Apply appropriate rehabilitation and medical strategies based on best practices for optimal outcomes.

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this live activity for a maximum of 13.75 AMA PRA Category 1 Credits^TM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this live activity for a maximum of 13.75 ANCC contact hours.  

Stanford Health Care Department of Rehabilitation is an approved provider for physical therapy, occupational therapy, and speech therapy for courses that meet the requirements set forth by the respective California Boards. This course is approved for 13.75 hour(s) CEU for PT, OT, and SLP.

Cancellation Policy
Cancellations received in writing no less than 20 days before the course will be refunded, less a 20% administrative fee. No refunds will be made on cancellations received after that date. Please send cancellation requests to [email protected].

Stanford University School of Medicine reserves the right to cancel or postpone this program if necessary; in the event of cancellation, course fees will be fully refunded. We are not responsible for other costs incurred such as non-refundable airline tickets or hotel penalties.

Accessibility Statement
 Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME Conference Coordinator.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: https://laneguides.stanford.edu/multicultural-health

For activity related questions, please contact
     Name: Melissa Schwartz
     Title: Events Project Manager
     Email: [email protected]

For CME general questions, please contact 
     Email: [email protected]

Stanford Center for Continuing Medical Education (SCCME) is committed to providing a safe and healthy environment for event attendees and staff members.  SCCME’s decisions and preventive measures will be guided by the requirements and recommendations of Stanford, as well as any federal, state, and local health authorities.  We will continue to monitor the evolving situation and guidelines. 

The responsibility of a safe and healthy environment is shared among SCCME, the venue, and all event attendees.  All attendees are expected to adhere to and abide by the safety measures below, to protect against the spread of COVID-19.

Stanford strongly recommends masking indoors and in crowded outdoor settings.  Masks will be mandatory for all in-person attendees, at the end of day Saturday, starting at 2:30pm to respect the needs of our patient panelists, scheduled for 3:15pm.  If you do not have a mask, a disposable mask will be provided to you.

All visitors arriving from international destinations must adhere to current Stanford travel policies, please visit the travelers page here for more information on these requirements.

If a visitor tests positive for COVID-19, within 10 days of being onsite, they must complete the General COVID-19 Case Reporting Form.

Conference Location
Li Ka Shing Center for Learning and Knowledge
291 Campus Drive
2nd Floor Conference Center 
Stanford, CA
Phone: 650-725-6884

Nearby Hotels
View hotel options by visiting: visit.stanford.edu/basics/lodging 

Visiting Stanford
To learn more about traveling to Stanford University, please browse visit.stanford.edu.

Mitigation of Relevant Financial Relationships

Stanford Medicine adheres to the Standards for Integrity and Independence in Accredited Continuing Education.

There are no relevant financial relationships with ACCME-defined ineligible companies for anyone who was in control of the content of this activity, except those listed in the table below. All of the relevant financial relationships listed for these individuals have been mitigated.

This CME Activity is supported in part by educational grants from Biogen, Inc., Genentech, Inc., Muscular Dystrophy Association and Scholar Rock Inc.