Spinal Muscular Atrophy: Best Practices for SMA in an Evolving Era: Advantages & Challenges of Multidisciplinary Care (RECORDED SESSIONS)

Date & Location

Tuesday, May 25, 2021, 12:00 AM - Friday, May 24, 2024, 11:59 PM

Overview

Internet Enduring Material Sponsored by Stanford University School of Medicine. Presented by the Division of Neuromuscular Medicine at Stanford University School of Medicine.

*Originally recorded on 12/3/2020 - 12/5/2020.

In this era of disease-specific treatments for individuals with SMA, the options for multidisciplinary medical and rehabilitative management are continuing to expand. Optimal management and treatment recommendations are evolving while ethical considerations are weighed to treat and manage patients with SMA effectively. The goal of these recorded sessions is to enhance the understanding of medical and rehabilitative management of SMA for healthcare providers who practice within or outside specialized centers, including: physicians; advanced care providers; physical, occupational, and speech therapists; nurses; social workers or other complex care team members. As more individuals with SMA are being diagnosed earlier, treated more effectively, and living longer lives, community providers are increasingly engaged with this population and the groundbreaking therapeutics that are revolutionizing their care. Furthermore, novel treatments will soon require similar care consideration for many other neuromuscular disorders.

Participants will be provided ways to integrate new 2020 advances into comprehensive care; and use new SMA standards as a model for multi-disciplinary care of all neuromuscular disease. These videos will include lectures that overview SMA multidisciplinary medical management across all ages and clinical presentations, including updates on available therapeutic treatments, issues related to newborn screening, and ethical considerations in the treatment and management of SMA. The didactic videos will be followed by in-depth discussions of the evolving SMA phenotypes across the lifespan, with case-based review of best practices for multidisciplinary care by physical, occupational, and speech therapists as well as by medical providers. The sessions will review SMA phenotypes by functional status and include discussions to develop rehabilitation programs that identify appropriate evaluations, goals, interventions and exercise strategies.

Registration

Release Date: May 25, 2021
Expiration Date: May 24, 2024
Estimated Time to Complete: 16 hours
Registration Fee: FREE
*Originally recorded on 12/3/2020 - 12/5/2020.

Credits

AMA PRA Category 1 Credits™ (16.00 hours), Non-Physician Participation Credit (16.00 hours)

Target Audience

Specialties - Neurology , Pediatrics

Professions - Advance Practice Nurse (APN), Fellow/Resident, Non-Physician, Nurse, Physician, Physician Associate, Registered Dietitian, Registered Nurse (RN), Social Worker, Student

Objectives

At the conclusion of this activity, participants should be able to:

Summarize the advantages and challenges of multidisciplinary care required for patients with SMA.
Choose and organize suitable rehabilitation programs based on best practices for functional status with available standards of care recommendations.
Recognize the ethical considerations for SMA treatment and management in this era of evolving disease-specific therapeutics and newborn screening.

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Credit Designation
American Medical Association (AMA)
Stanford Medicine designates this Enduring Material for a maximum of 16.0 AMA PRA Category 1 Credits^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Additional Information

Accessibility Statement
Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008. If you have needs that require special accommodations, please contact us.

Cultural and Linguistic Competency
The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws. You are encouraged to visit the Multicultural Health Portal: http://lane.stanford.edu/portals/cultural.html

Reference/Bibliography
Click HERE to view a full list of references and resources.

For CME general questions, please contact
Ph: (650)-497-8554
Email: [email protected]

Faculty	Role	Disclosure Information Not Available
Ana Tesi Rocha, MD	Co-Course Director, Faculty	Advisory Board-Sarepta, Biogen
Clinical Associate Professor, Pediatric Neurology & Neurological Science
Stanford University School of Medicine
John Day, MD, PhD	Course Director, Faculty	Advisory Board-Biogen Idec\|Contracted Research-Biogen Idec\|Contracted Research-AveXis Therapeutics\|Advisory Board-AveXis Therapeutics\|Speakers Bureau-Genentech, Inc.\|Contracted Research-Genentech, Inc.\|Advisory Board-Genentech, Inc.\|Contracted Research-Sarepta Therapeutics\|Advisory Board-Sarepta Therapeutics\|Contracted Research-Audentes\|Contracted Research-Pfizer, Inc.\|Contracted Research-Ionis Pharmaceuticals\|Contracted Research-Scholar Rock\|Contracted Research-Cytokinetics\|Advisory Board-Cytokinetics\|Royalty-Athena Diagnostics
Professor of Neurology and Pediatrics (Genetics) and by courtesy, Pathology
Stanford University School of Medicine
Jill Abramson, MD, MPH	Faculty	Nothing to disclose
Associate Medical Director, Medical Operations and Policy Branch
Director, CCS Specialty Programs
Kimberly Anderson, MS, OTR/L	Faculty	Nothing to disclose
Outpatient Occupational Therapy
The Children's Hospital of Philadelphia
Alison Ballard, MSN, RN, CPNP-PC	Faculty	Nothing to disclose
Certified Pediatric Nurse Practitioner
Children’s Hospital of Colorado
Alyssa Marie Uphoff Burgart, MD	Faculty	Nothing to disclose
Co-Chair of the Ethics Committee, Lucile Packard Children’s Hospital
Clinical Assistant Professor, Anesthesiology, Perioperative and Pain Medicine, Stanford University
MyMy Cong Huyen Buu, MD	Faculty	Nothing to disclose
Clinical Assistant Professor, Pediatrics - Pulmonary Medicine
Stanford University
Michelle Cao, DO	Faculty	Speakers Bureau-Genzyme Corporation
Clinical Associate Professor, Neurology & Neurological Sciences & Clinical Associate Professor, Psychiatry and Behavioral Sciences - Stanford Center for Sleep Sciences and Medicine
Stanford University School of Medicine
Harvey J Cohen, MD	Faculty	Nothing to disclose
Deborah E. Addicott – John A. Kriewall and Betsy A. Haehl Family Professor in Pediatrics in February 2007, and the Katie and Paul Dougherty Medical Director of Palliative Care
Stanford University
Morgan Duffy, BS	Faculty	Nothing to disclose
Bakri Elsheikh, MD	Faculty	Advisory Board-Biogen Idec\|Advisory Board-Argenx
Professor Department of Neurology
The Ohio State University
Timothy Estilow, OTR/L	Faculty	Nothing to disclose
Occupational Therapist, Occupational Therapy Department
The Children's Hospital of Philadelphia
Richard S Finkel, MD	Faculty	Advisory Board-AveXis\|Advisory Board-Biogen Idec\|Advisory Board-Capricor\|Advisory Board-Catabasis\|Advisory Board-ReveraGen\|Advisory Board-Roche\|Advisory Board-Scholar Rock\|Consulting fees-Neurogene\|Contracted Research-AveXis\|Contracted Research-Biogen Idec\|Contracted Research-Capricor\|Contracted Research-Catabasis\|Contracted Research-ReveraGen\|Contracted Research-Roche\|Intellectual Property Rights/Patent Holder-Children's Hospital of Philadelphia\|Royalty-Elsevier\|Royalty-National Jewish Center for Immunology\|Advisory Board-n-Lorem Foundation\|Advisory Board-Every Life Foundation
Director of Translational Neuroscience Research
St. Jude Children's Research Hospital
Marie Hamilton, MSN, RN, CNS, CWOCN	Faculty	Nothing to disclose
Wound and Ostomy Team Member
Lucile Salter Packard Children’s Hospital
Kayla Hernandez, SLP	Faculty	Nothing to disclose
Speech-Language Pathologist, Feeding and Swallowing Program
Boston Children's Hospital
Christy Holman, BS	Faculty	Disclosure Information Not Available
Becky Hurst Davis, MS, RD, CSP, CD, CNSC	Faculty	Nothing to disclose
Pediatric Nutritionist
Intermountain Healthcare
Andrea Johnson, RN, BSN	Faculty	Nothing to disclose
Manager Wound & Ostomy Team
Lucile Salter Packard Children’s Hospital
Sara Kevern, RD, CNSC	Faculty	Consulting fees-Genentech, Inc.
Clinical Dietitian III
Stanford Health Care and Stanford Children’s Health
Kristin J Krosschell, DPT	Faculty	Consulting fees-Cure SMA\|Consulting fees-Biogen\|Advisory Board-Roche\|Consulting fees-Aspa Therapeutics\|Grant support-American Physical Therapy Association\|Contracted Research-Lurie Children's Hospital subcontracts for Biogen, Scholar Rock, Avexis and NIH/NINDS supported studies
Professor of Physical Therapy and Human Movement Sciences and Pediatrics
Northwestern University Feinberg School of Medicine
Kathie S Lin, MD	Faculty	Nothing to disclose
Clinical Assistant Professor
Stanford University
Eugenio Mercuri, MD, PhD	Faculty	Advisory Board-Novartis AG\|Advisory Board-Roche\|Advisory Board-Biogen Idec\|Advisory Board-scholar Rok
Professor of Pediatric Neurology
Catholic University, Italy
Jacqueline Montes, PT, EdD, NCS	Faculty	Advisory Board-Biogen Idec\|Advisory Board-Roche\|Consulting fees-Scholar Rock\|Advisory Board-Sarepta
Associate Professor of Rehabilitation and Regenerative Medicine in the Program for Physical Therapy
Columbia University Irving Medical Center
Julie M Muccini, MS, OTR/L	Faculty	Consulting fees-Genentech, Inc.
Occupational Therapist, Clinical Specialist for Outpatient Neuro
Stanford Health Care
Leslie Nelson, PT, PhD	Faculty	Consulting fees-Roche\|Advisory Board-Biogen\|Advisory Board-Scholar Rock
Assistant Professor, Southwestern School of Health Professions, Department of Physical Therapy
University of Texas Southwestern
Dong Nguyen, MA	Faculty	Nothing to disclose
Administrative Associate
Stanford University
Melissa Ou, ACSW, MSG, CCM	Faculty	Nothing to disclose
Director of Clinical Engagement and Support
Muscular Dystrophy Association
Mary Schroth, MD	Faculty	Nothing to disclose
Chief Medical Officer
Cure SMA
Danielle Sheypuk, PhD	Faculty	Nothing to disclose
Licensed Psychologist
Private Practice- Self-Employed
Carly Siskind, MS, LCGC	Faculty	Consulting fees-Genentech, Inc.
Clinical Associate Professor of Neurology (Affiliated); Genetic Counselor
Stanford University School of Medicine
Sarah Stranberg, MA, CCC-SLP	Faculty	Consulting fees-Genentech, Inc.\|Consulting fees-Roche\|Consulting fees-doc.ai
Senior Speech-Language Pathologist, Stanford Neuroscience Health Center
Stanford Health Care
Holly K. Tabor, PhD	Faculty	Nothing to disclose
Associate Professor
Stanford University
John S Vorhies, MD	Faculty	Nothing to disclose
Assistant Professor of Orthopaedic Surgery
Lucile Salter Packard Children’s Hospital
Connie Wolford , MSN, FNP-BC	Faculty	Speakers Bureau-Biogen Idec
Nurse Practitioner
Stanford University School of Medicine
Angela Wrigglesworth, M. Ed.	Faculty	Nothing to disclose
Abilities Advisor
Cobble + Stone Consulting
Tian Zhang, MD, PhD	Faculty	Disclosure Information Not Available
Stanford University
Sally Dunaway Young, PT, DPT	Faculty, Planner	Advisory Board-Biogen Idec\|Advisory Board-Roche\|Advisory Board-Scholar Rock\|Advisory Board-Genentech, Inc.\|Consulting fees-CureSMA
Physical Therapist, Clinical Research Manager, Division of Neuromuscular Medicine
Stanford University
Tina Duong, PT, PhD	Faculty, Planner	Advisory Board-Roche\|Advisory Board-Biogen Idec\|Advisory Board-Novartis AG
Physical Therapist, Clinical Research Manager, Division of Neuromuscular Medicine
Stanford
Richard Gee, PT	Faculty, Planner	Advisory Board-Biogen Idec\|Consulting fees-Biogen Idec\|Advisory Board-Roche
Physical Therapist
Lucile Packard Children’s Hospital
Dana McDonnell, MS	Planner	Nothing to disclose
Clinical Research Coordinator
Stanford University
Dong Nguyen, MA	Planner	Disclosure Information Not Available
Administrative Associate II
Stanford University
Whitney Tang	Planner	Nothing to disclose
Clinical Research Coordinator
Stanford University
Gayla Weng, MA	Planner	Nothing to disclose
Neuromuscular Program Coordinator
Stanford University