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Spinal Muscular Atrophy: Current Advances in Treatment and Recommendations for Evaluation and Rehabilitation

Spinal Muscular Atrophy: Current Advances in Treatment and Recommendations for Evaluation and Rehabilitation Banner

  • Overview
  • Faculty
  • Agenda
  • Brochure
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Add to Calendar Spinal Muscular Atrophy: Current Advances in Treatment and Recommendations for Evaluation and Rehabilitation 12/6/2019 7:00:00 AM 12/7/2019 5:15:00 PM America/Los_Angeles Li Ka Shing Center for Learning and Knowledge (LKSC) false MM/DD/YYYY


Date & Location
Friday, December 6, 2019, 7:00 AM - Saturday, December 7, 2019, 5:15 PM, Li Ka Shing Center for Learning and Knowledge (LKSC), Stanford, CA

Overview
This two day course is provided to first, teach healthcare providers on the clinical perspective of spinal muscular atrophy (SMA) including the broad phenotypic spectrum of pediatric and adult patients, evidence of natural history of the disease, new updates to standards of care, clinical outcome measures/standardized assessments, and the influence of therapies both approved and in development; and second, to support healthcare providers, outside of specialized SMA centers, to manage rehabilitation programs and evaluate patient progress using validated standardized clinical assessments in SMA.

At the end of this course, participants will have an understanding of the current advances in treatment as well as recommendations for the evaluation and rehabilitation management in SMA. Attendees will comprehend how to relate the standards of care to clinical practice and assess SMA patients with standardized clinical measures.

Registration

Registration fee includes course materials, certificate of participation, breakfast and lunch.

Early Bird Rate: 

Physicians - $250 
Nurses/AHP - $200 
Industry- $350

After 11/05/19 

Physicians - $300 
Nurses/AHP - $250 
Industry- $400 

Tuition may be paid by Visa, MasterCard or check. Your email address is used for critical information, including registration confirmation, evaluation, and certificate. Be sure to include an email address that you check frequently. If you prefer to pay by phone or check, please contact the Stanford Center for CME at (650) 497-8554 for assistance.

STAP-eligible employees can use STAP funds towards the registration fees for this activity.  Complete the STAP Reimbursement Request Form and submit to your department administrator. 


Accreditation

The Stanford University School of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
 
Stanford Health Care Department of Rehabilitation is an approved provider for physical therapy, occupational therapy, and speech language pathology for courses that meet the requirements set forth by the respective Boards. 
 
Credit Designation

The Stanford University School of Medicine designates this live activity for a maximum of 14 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The California Board of Registered Nursing recognizes that Continuing Medical Education (CME) is acceptable for meeting RN continuing education requirements as long as the course is certified for AMA PRA Category 1 Credits™ (rn.ca.gov).  Nurses will receive a Certificate of Participation following this activity that may be used for license renewal.

This course is approved for SLP (6.75 credits for Friday attendance),  Approved for PT and OT 14 credits for completion of entirety of course.

 

Accessibility Statement
 
Stanford University School of Medicine is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME Conference Coordinator.

Cultural and Linguistic Competency

The planners and speakers of this CME activity have been encouraged to address cultural issues relevant to their topic area for the purpose of complying with California Assembly Bill 1195. Moreover, the Stanford University School of Medicine Multicultural Health Portal contains many useful cultural and linguistic competency tools including culture guides, language access information and pertinent state and federal laws.  You are encouraged to visit the Multicultural Health Portal: http://lane.stanford.edu/portals/cultural.html

Conference Contact:

Mary Sisney
Marketing and Meeting Planning Specialist
Ph: (650) 724-7166
Email: msisney@stanford.edu

The registration form for this activity Is currently unavailable.

Nearby Hotels

Hotel options by visiting: http://visit.stanford.edu/plan/lodging

Visiting Stanford

To learn more about traveling to Stanford University, please browse visit.stanford.edu.

Conference Location:


Li Ka Shing Center for Learning and Knowledge
291 Campus Drive
2nd Floor Conference Center 
Stanford, CA
Phone: 650-725-6884

Parking

Friday:
Parking scratchers/permits required on weekdays.

Registered conference attendees may park at the designated parking lot, Searsville Lot (L-22), on Friday, December 6, 2019.  Please park in the designated "E" parking. 

You must register your vehicle prior to the event in order to park in Searsville Lot (L-22). Please register your vehicle at your earliest convenience here: 

https://stanford.nupark.com/v2/portal/eventregister/47502a57-716d-4da7-abea-c159d0daaf6e


Li Ka Shing Center (LKSC) is 10 minute walking distance along Campus Drive from the Searsville Lot.

The free Marguerite Shuttle, Hospital Direct (HD) line is available from the Searsville Lot to Li Ka Shing Center (LKSC).

Saturday:
Free parking on weekends.

Parking is available on Saturday at no charge in any permit spot (A or C). If you are unsure where to find A and C parking we recommend Lot-18 or Stock Farm Garage.


The Stanford University School of Medicine adheres to ACCME Criteria, Standards and Policies regarding industry support of continuing medical education.  Disclosure of faculty and their commercial relationships will be made prior to the activity.

MyMy Cong Huyen Buu, MD
Clinical Assistant Professor, Pediatrics - Pulmonary Medicine
Stanford University School of Medicine
Palo Alto, CA
Terri Carry, PT
Physical Therapist
Children's Hospital Colorado
Centennial , CO
Matthew Civitello, MPT
Physical Therapist
Nemours Children’s Hospital
Orlando, FL
Basil Darras, MD
Associate Neurologist-in-Chief, Division of Clinical Neurology Director, Neuromuscular Center and Spinal Muscular Atrophy Program
Harvard Medical School
John West Day, MD, PhD
Professor of Neurology and Pediatrics (Genetics) and by courtesy, Pathology
Stanford University School of Medicine
Palo Alto, CA,
Darryl C De Vivo, MD
Sidney Carter Professor of NeurologyProfessor of Pediatrics; Associate Chairman (Neurology) for Pediatric NeurosciencesCo-Director, Center for Motor Neuron Biology and Disease
Columbia University Irving Medical Center, The Neurological Institute
New York, NY
Sally Dunaway Young, PT, DPT
Physical Therapist, Division of Neuromuscular Medicine
Stanford University School of Medicine
Palo Alto, CA
Tina Duong, MPT, PhD
Physical Therapist, Division of Neuromuscular Medicine
Stanford University School of Medicine
San Francisco, CA
Richard S Finkel, MD
Division Chief, Division of Neurology, 
Department of Pediatrics, Nemours
Orlando, FL
Richard Gee, PT
Physical Therapist, Lucile Packard Children’s Hospital
Stanford University School of Medicine
Fremont , CA
Allan Glanzman, PT, DPT, PCS
Clinical Specialist IV in Physical Therapy
Children's Hospital of Philadelphia
Ava Lin, MD
Neuromuscular Fellow, Neurology and Neurological Sciences
Stanford University School of Medicine
Oscar H Mayer, MD
Professor of Clinical Pediatrics Attending Pulmonologist and Director of the Pulmonary Function Laboratory
Children's Hospital of Philadelphia
Doylestown, PA
Elena Mazzone, DPT
Catholic University
Washington, DC
Jacqueline Montes, PT, EdD, NCS
Assistant Professor of Rehabilitation and Regenerative Medicine in the Programs for Physical Therapy
Columbia University Irving Medical Center
New York, NY
Leslie Nelson, PT, PhD, OCS
Assistant Professor, School of Health Professions
UT Southwestern Medical Center
Julie Parsons, MS
Co-Director, Neuromuscular Clinic
Children's Hospital Colorado
Amy Pasternak, PT, DPT, PCS
Physical Therapist, Department of Physical Therapy and Occupational Therapy Services
Boston Children’s Hospital
Jacinda Beth Sampson, MD
Clinical Associate Professor, Neurology and Neurological Sciences
Stanford University School of Medicine
Palo Alto, CA
Perry B Shieh, MD, PhD
Associate Professor of Neurology
University of California Los Angeles
Encino, CA
Carly Siskind, MS, LCGC
Clinical Associate Professor of Neurology (Affiliated); Genetic Counselor
Stanford University School of Medicine
palo alto, CA
Ana Carolina Tesi Rocha, MD
Clinical Associate Professor, Pediatric Neurology & Neurological Science
Stanford University School of Medicine
Palo Alto, CA
Connie Wolford, NP
NP
Stanford Healthcare
Palo Alto, CA

Friday, December 6, 2019
Registration & Continental Breakfast
7:00AM - 8:00AM
Welcome & Introductions
8:00AM - 8:15AM
John West Day, MD, PhD
Ana Carolina Tesi Rocha, MD
SMA Pathophysiology, Diagnosis and Clinical Presentations
8:15AM - 9:00AM
Darryl C De Vivo, MD (Speaker)
John West Day, MD, PhD (Moderator)
Approved Treatment and Upcoming Therapeutic Strategies
9:00AM - 9:45AM
Basil Darras, MD (Moderator)
Perry B Shieh, MD, PhD (Speaker)
Break
9:45AM - 10:15AM
Infantile Onset Spinal Muscular Atrophy
10:15AM - 11:00AM
Richard S Finkel, MD (Moderator)
Ana Carolina Tesi Rocha, MD (Speaker)
Later onset Spinal Muscular Atrophy
11:00AM - 11:45AM
Basil Darras, MD (Moderator)
Julie Parsons, MS (Speaker)
Pre-symptomatic Spinal Muscular Atrophy
11:45AM - 12:30PM
Darryl C De Vivo, MD (Moderator)
Richard S Finkel, MD (Speaker)
Lunch
12:30PM - 1:30PM
Managing Adults with Spinal Muscular Atrophy
1:30PM - 2:15PM
Jacinda Beth Sampson, MD (Moderator)
Connie Wolford, NP (Speaker)
Respiratory Management in Spinal Muscular Atrophy
2:15PM - 3:00PM
Oscar H Mayer, MD (Speaker)
MyMy Cong Huyen Buu, MD (Moderator)
Break
3:00PM - 3:30PM
The Patient Experience
3:30PM - 4:15PM
Ava Lin, MD (Speaker)
Carly Siskind, MS, LCGC (Moderator)
Panel Discussion
4:15PM - 5:00PM
Social Hour Wine & Cheese Event (NO CME)
5:00PM - 6:00PM
Saturday, December 7, 2019
Registration and Continental Breakfast
7:00AM - 8:00AM
Clinical Evaluations/Assessments for Spinal Muscular Atrophy
8:00AM - 8:45AM
Tina Duong, MPT, PhD
Updated Rehabilitation Standards of Care
8:45AM - 9:30AM
Richard Gee, PT
Exercise Recommendations in Spinal Muscular Atrophy
9:30AM - 10:15AM
Jacqueline Montes, PT, EdD, NCS
Break
10:15AM - 10:30AM
Childrens Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND)
10:30AM - 11:25AM
Allan Glanzman, PT, DPT, PCS
Leslie Nelson, PT, PhD, OCS
Hammersmith Infant Neurological Exam – Part 2 Motor Milestones
10:30AM - 11:25AM
Basil Darras, MD
Richard S Finkel, MD
Rotate Speakers
11:25AM - 11:35AM
Childrens Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND)
11:35AM - 12:30PM
Allan Glanzman, PT, DPT, PCS
Leslie Nelson, PT, PhD, OCS
Hammersmith Infant Neurological Exam – Part 2 Motor Milestones
11:35AM - 12:30PM
Basil Darras, MD
Richard S Finkel, MD
Lunch
12:30PM - 1:30PM
Revised Upper Limb Module (RULM)
1:30PM - 2:25PM
Matthew Civitello, MPT
Amy Pasternak, PT, DPT, PCS
Hammersmith Functional Motor Scale Expanded (HFMSE)
1:33PM - 2:25PM
Terri Carry, PT
Sally Dunaway Young, PT, DPT
Rotate Speakers
2:25PM - 2:35PM
Hammersmith Functional Motor Scale Expanded (HFMSE)
2:35PM - 3:30PM
Terri Carry, PT
Sally Dunaway Young, PT, DPT
Revised Upper Limb Module (RULM)
2:35PM - 3:30PM
Matthew Civitello, MPT
Amy Pasternak, PT, DPT, PCS
Break
3:30PM - 3:45PM
Six-Minute Walk Test
3:45PM - 4:15PM
Jacqueline Montes, PT, EdD, NCS
Leslie Nelson, PT, PhD, OCS
Community Resource Discussion Network Initiatives
4:15PM - 4:45PM
Jacqueline Montes, PT, EdD, NCS
Sally Dunaway Young, PT, DPT
Group Discussion
4:45PM - 5:00PM
Closing Comments & Adjourn
5:00PM - 5:15PM
John West Day, MD, PhD
Ana Carolina Tesi Rocha, MD

This CME Activity is supported in part by educational grants from AveXis, Inc., Biogen, Cytokinetics, Inc., Genentech, Ionis Pharmaceuticals, Muscular Dystrophy Association, and Scholar Rock, Inc.


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